Posts Tagged ‘transplant patient stories’

Good Morning America Pays Tribute to a Transplant Recipient’s Wife

It all started with a Facebook post…Raleigh Callaway, a veteran Georgia police officer and patient of the Emory Transplant Center, needed a kidney transplant. Desperate to find a match as he entered the late stages of renal failure, he and his wife, Kristi Callaway, turned to social media to find a potential donor. Kristi posted a message on Facebook sharing Raleigh’s need for a kidney. The post resulted in more than 900 people contacting the Emory Transplant Center – one of whom was Chris Carroll, a health care consultant and grandfather from McKinney, Texas. He saw the Callaway family pictured on Facebook with their two children holding a sign that read, “Our Daddy Needs a Kidney.” Chris said he felt divinely led to call to see if he could become a donor. On Thursday, September 25, 2014, Raleigh received Chris’ kidney. Both recipient and donor are doing well.

But even after her husband found a kidney, Kristi Callaway continued her mission of supporting organ donations and helping to connect individuals in need of a kidney with donors from across the country. So far she has save 23 lives by connecting kidney donors to those in need. Good Morning America recognized Kristi for her extraordinary work.

Check out the full story and the video here.

 

Georgia Transplant Foundation Gala Provides Assistance to Our Patients

Raleigh Callaway

Raleigh Callaway

Nearly 25 years ago, Tom Glavine’s Spring Training started as a small fundraiser for Georgia Transplant Foundation. In its first year it raised only $17,000 but in 2014 it brought in more than $300,000.

This year, on February 7th, the Spring Training event was the year’s most productive transplant fundraiser, netting more than a quarter million dollars for Georgia Transplant Foundation (GTF) programs that assist many of our patients. More than 1,000 people from the transplant community were on hand for the event, which was held this year at the newly renovated Delta Flight Museum near Hartsfield-Jackson International Airport.

Bill Backus, a heart transplant recipient from Emory and president of GTF’s board of directors, served as master of ceremonies. In fact, at least 20 Emory transplant recipients were there, including Raleigh Callaway, the Greensboro, Georgia policeman who received a living donor kidney transplant last fall.

“Last year, GTF provided financial assistance grants to nearly 400 of Emory’s transplant recipients and candidates,” reports Cheryl Belair, GTF director of development and community relations. “In 2014, GTF provided more than $1.2 million in financial assistance to Georgia’s transplant population.” Over the years, the gala has raised $6.2 million for the GTF, directly impacting the lives of the transplant patients the organization serves.

This year was retired Braves pitcher Tom Glavine’s 23rd annual Spring Training event. He was inducted into the Baseball Hall of Fame in 2014.

transplant recipients

Transplant recipients gather for a picture at the Miller Ward Alumni House during the Annual Heart to Heart Celebration for transplant recipients and their guests.

A Home Away From Home for Transplant Patients

Mason House VisitThe Mason Guest House is a private retreat on the Emory University campus offering low cost housing for organ transplant candidates, recipients, living donors, and their families. It serves as a home-away-from-home, allowing patients to be away from the hospital setting, but yet close enough to feel secure should they need medical assistance.

During the holiday season, the Mason Guest House, like Emory University Hospital, did not close. It continued to serve transplant patients and their families, opening their doors to accommodate as many guests as possible. Kidney transplant recipient Donald Mason invited a couple of family members to enjoy Thanksgiving dinner with him.

The wife of a lung transplant patient wrote on a comment card, “Because the timing of our transplant (and additional complications) that happened over the holidays, it touched our hearts that the Mason Guest House took that under consideration [and provided a] ‘holiday feel’ with a Thanksgiving dinner and atmosphere that allowed us to enjoy the holiday even though we were not able to spend it at home with our family. We now have extended family with your staff. God bless and thank you for all you do.”

Mason House HolidayLiver transplant recipient, Robert Croyle, schedules his annual follow-up appointments during the Thanksgiving holiday each year so that he can bring his traditional cornbread stuffing for dinner and play special holiday music for guests.

The Mason Guest House also hosted its annual Christmas dinner with some of the same guests who remained at the House throughout the holidays.

Many guests have to catch meals when they can, sometimes at odd hours. “Having a nice, unhurried sit-down meal is a much needed comfort to a lot of our guests,” says Mason Guest House guest services coordinator Zadya Lundgren. “We always enjoy the festive spirit and lively conversations we get to have with our guests during the holidays.”

For more information about the Mason Guest House or to make a reservation, call 404-712-5110.

Take a tour of the Mason Guest House. 

The Most Precious Gift – the Gift of Life

As a reminder during the hustle and bustle of the holiday season, please take a moment to reflect on those who have given the most precious of gifts – the gift of life.

At Emory, each time a patient or their family makes the generous decision to donate his or her organs; a Donor Flag is raised in their honor. The family is then presented with a replica flag as a memento of this most precious gift.

“As the Donate Life flag is raised, what that means to me is it honors those who have graciously made the decision to give life. And it also allows people hope and a second chance with their renewed and active life”, says Kimberly Simpson-Dailey.

In this video, Kimberly Simpson-Dailey remembers her son, Anthony, whose organs were donated when a sudden and rare illness took his life. She reflects on this with a mix of pride and grief. May we remember all of our loved ones this holiday season, honoring their life and the life they have passed on to others.

AJC Features Emory Transplant Center Patients Freed of Type 1 Diabetes

islet transplant patientThe Emory Transplant Center is one of just a handful of institutions around the world performing islet transplants as a type 1 diabetes treatment. Emory is currently the only islet cell transplant program in Georgia, with 19 patients receiving islet transplants to date.

Islet cell transplant is still in the research phase awaiting Food and Drug Administration (FDA) approval so the surgery will no longer be experimental. Read a story in the Atlanta Journal Constitution featuring two Emory patients who have been diabetes free for a decade now thanks to islet transplant at Emory.

Learn About Islet Transplants

What Are Islets?
Islets are insulin-producing cell clusters found in the pancreas, which is a six- to ten-inch organ that lies behind the stomach. Each islet cluster is about the size of a grain of salt and contains a few thousand cells. A healthy pancreas has approximately a million islet clusters.
Glucose is the fuel that provides energy to cells. Insulin allows glucose from the bloodstream to enter cells. Without insulin, cells are deprived of fuel, and they begin to starve. As the cells starve, the level of glucose in the bloodstream rises to dangerous levels.
In type 1 diabetes, islets in the pancreas are destroyed by the body’s immune system. Without islets, the body cannot produce insulin. People with type 1 diabetes require several injections of insulin each day. They must follow a strict diet and monitor their blood glucose carefully. Sometimes, even the most diligent patients cannot completely control their blood sugar levels. Diabetes that is very difficult to control is called brittle diabetes.

Why Islet Transplantation?
Islet transplantation can restore insulin production by replacing the islets that have been destroyed. When insulin production is restored, blood glucose levels stabilize, and the health risks associated with low and high blood sugars are greatly reduced.

What Is an Islet Transplant?
The islet cell transplant process begins when islets for transplantation from a donated pancreas become available. During the islet transplantation procedure, the islets are infused into a blood vessel that leads to the liver. The islets from the pancreas are also separated from other cells through a highly complex process called “islet isolation.” The islets are then infused and lodged into the liver of the recipient, where they are able to detect the level of glucose in the blood and produce the correct amount of insulin. Recent advances in islet isolation have resulted in sustained insulin independence in people with type 1 diabetes, which may make islet transplantation more common in the foreseeable future.

The Gift of Organ Donation – April is Donate Life Month

donate-lifeFor many, April signifies the start of spring with the first signs of sunnier days, bluer skies and growing flowers. But for transplant patients, their families and donors, April symbolizes another kind of rebirth – the journey of organ transplantation and the generous gifts of organ donors.

Started in 2003 and celebrated every April, National Donate Life Month aims to highlight the growing need for organ and tissue donations and provide a positive reminder for people to sign up to become donors. As we celebrate Donate Life Month, we’d like to take a look back at some of our amazing stories of donation and transplantation. None of these stories would have been possible without organ donation:

If you’re interested in registering to become a donor, it’s simple. Just visit http://donatelife.net/register-now/.

Related Resources:

Emory Transplant Center

10 Years and Still Diabetes Free – Islet Cell Transplant Patients Celebrate Anniversary of Life-Changing Procedure

islet-trans-patients“I feel free. I feel normal.” That’s what Emory Transplant Center patient Laura Cochran says of her life since having a pancreatic islet cell transplant to treat her brittle Type 1 diabetes.

Last week, Cochran, along with the Emory Transplant Center team and fellow patient Rob Allen, gathered to celebrate the 10-year anniversary of their participation in a clinical trial for their severe Type 1 diabetes. Type 1 diabetes is an autoimmune disease in which the pancreas ceases to produce insulin, a hormone that allows people to get energy from food. Type 1 diabetics must take insulin every day to live.

Both Cochran and Allen were diagnosed with Type 1 diabetes as young adults. Allen’s diabetes was controlled with insulin injections for about 10 years until his episodes of low blood sugar became more frequent and more severe. As for Cochran, as her diabetes progressed, she developed hypoglycemia unawareness, where her blood sugar would drop so low so quickly, that she didn’t recognize how low her sugars were. She often became dazed during these episodes and had to be watched at all times. While both benefitted some from insulin pumps, they still needed more relief. Fortunately, they were candidates for a clinical trial at Emory where donor pancreatic islet cells were transplanted to restore insulin production in people with Type 1 diabetes.

Cochran and Allen each received two islet cell transplants from two different organ donors, several months apart. After the first transplant, they both still needed small amounts of insulin injections. After the second transplant, neither Cochran nor Allen needed insulin injections. Both have been insulin free since 2004.

“We transplanted just two teaspoons of islet cells into these patients 10 years ago, and they no longer need insulin injections,” says Christian Larsen, MD, DPhil, professor of surgery in the Division of Transplantation at Emory, and dean of Emory University School of Medicine. “This has been a miraculous transformation.”

Researchers are awaiting FDA approval of islet cell transplants so that the surgery will no longer be experimental. Once approval is obtained, surgeons can perform these transplants on patients who meet the criteria.

“The best part about the islet cell transplants is not having to worry daily about my blood glucose levels getting out of control,” says Allen. “It has been an amazing thing.”

Related Resources

Emory Islet Transplant Program
Islet Transplant For Type 1 Diabetes? Julie Allred’s Story

Mother Daughter Team Kicks Off Six-Way Kidney Swap

kidney-swapWhen Mother’s Day rolls around this year, Cindy Skrine and her daughter, also named Cindy, will have a lot to celebrate. Having lived with kidney disease for many years, the elder Cindy needed a kidney transplant. Her daughter was tested as a donor, but ultimately was not a match for her mother. She was, however, a match for someone in California. With the help of Emory’s Kidney Paired Donor Exchange program, thus began a six-way kidney swap that stretched from Georgia to California to Tennessee and then back to Georgia.

“Emory began its Kidney Paired Donor Exchange Program in 2010, and we have been participating in the National Kidney Registry since 2012,” says Nicole Turgeon, MD, associate professor of surgery, Emory University School of Medicine and surgical director of the Paired Donor Exchange Program. “Paired donor exchange gives patients an opportunity to receive a living donor kidney transplant from a loved one or friend, despite incompatible blood types and positive crossmatches. In paired donation, a donor and recipient are matched with another incompatible donor and recipient pair, and the kidneys are exchanged between the pairs.

According to Dr. Turgeon, there are currently more than 100,000 people on the kidney transplant waiting list. The discrepancy between the number of organs available and the number of people on the waiting list continues to grow. The Emory Transplant Center is the state’s largest transplant center performing the highest volume of kidney transplants in Georgia.

To learn more about the Skrine’s story, check out the video below:

Visit the Emory Kidney Transplant Program website for more information on the Emory Paired Donor Exchange program.

Celebrating the Gift of Life in the New Year

Donate Life New Year's FloatWhile many people were recovering from New Year’s Eve parties and setting their resolutions for 2014, Emory transplant recipients Amy Tippins and Julie Allred were celebrating life on a much grander scale on New Year’s Day.

Tippins and Allred were two of 30 transplant recipients nationwide who rode on the Donate Life float in the Rose Parade in Pasadena, Calif., which preceded the Rose Bowl. The float, which featured illuminating lanterns, was called “Light Up the World,” and sought to bring awareness to organ and tissue donation.

Tippins received a liver transplant in 1993 at Emory University Hospital after being diagnosed as a teenager with hepatic adenoma, a rare benign tumor of the liver. In the 20 years since her transplant, Tippins has gone on to graduate high school, college, own her own company and volunteer with the Georgia Transplant Foundation.

Julie Allred on the Donate Life Float

Julie Allred on the Rose Parade Donate Life Float

Allred, a type 1 diabetic since age 10, got her first insulin pump in 1992. Despite her efforts to carefully watch her diet and test regularly, she continued to suffer the effects of severe hypoglycemia. But thanks to two islet cell transplants at the hands of Emory transplant surgeon Dr. Nicole Turgeon and interventional radiologist Dr. Kevin Kim, Julie has experienced relief in ways she never knew possible. Soon after the first islet transplant, the episodes of life-threatening low blood sugar levels stopped for Allred, helping her get back to the things she enjoys.

Dr. Turgeon joined Allred and Tippins on the Donate Life float, which also was decorated with floragraph portraits of deceased organ donors.

“The Rose Parade float is just one of the many ways we can raise awareness of the importance, need and life-saving capabilities of organ donation,” says Turgeon. “I was thrilled to be able to both honor our donors and celebrate life with our recipients.”