Posts Tagged ‘living donor transplant’

100,000 People are Waiting for a Kidney. Learn More About Emory’s Paired Donor Exchange Program

Paired Donor Exchange ProgramDid you know that there are nearly 100,000 people on the kidney transplant waiting list? With the average wait time for a kidney now at four years, patients are often eager to seek other options to waiting on a deceased donor kidney so that they can get back to living a healthy life. Fortunately, with today’s medical advances, a living or a deceased person can donate a kidney.

The Emory Transplant Center launched its Kidney Paired Donor Exchange Program in 2010 and has been participating in the National Kidney Registry since 2012. Join Nicole Turgeon, MD, associate professor of surgery, Emory University School of Medicine and surgical director of the Paired Donor Exchange Program on April 8 for an online live chat to learn how paired donor exchange works, what it takes to become a donor and how paired donor exchange is helping patients dramatically improve their quality of life.

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Six Lives Connected through Paired Donor Kidney Exchange

Living Organ DonationThe Emory Transplant Center played a role in a 6-chain kidney swap that will forever bind 6 individuals.  Maya Cosola wanted to donate a kidney to her aunt but was not a compatible match.  So she agreed to be a part of paired donor kidney exchange program that allows incompatible donor and recipient pairs to be matched with other incompatible donor and recipient pairs, allowing kidneys to be exchanged between these pairs. A match between pairs was arranged, and Maya’s kidney was flown to someone in North Carolina, and thus began the 6-chain exchange across 4 states.

Share their touching story in this video from Fox 5 below:

Visit the Emory Kidney Transplant Program website for more information on the Emory Paired Donor Exchange program.

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When Living Organ Donation Means Living On Through Others

Living Organ Donation Donate Life MonthIn recognition of Donate Life month, the Emory Transplant Center was honored to have a very special speaker share an extraordinary story – one that touches the very heart of what it means to give the gift of life even in times of heartbreak.

Scott Haggard shared with Emory physicians and staff the story of his sister, Terri Haggard Wade – a loving 48 year old wife, mother, sister and daughter – who spent her professional career as a nurse.  And as part of the medical profession, Terri knew the importance of organ donation.  As a matter of fact, when her son was learning to drive, Terri said that before he could drive on his own, he would need to register to become an organ donor.

It was March of 2009 when Terri was rear ended in an automobile accident.  She began to experience headaches, and when they continued after a few weeks, Terri decided to go to an urgent care center to be evaluated. The urgent care center sent her to a nearby hospital to have a CT scan of her head.  And that was when they discovered Terri had a brain tumor.

On April 15, 2009, Terri had surgery to remove her tumor.  The surgery was more complicated than anticipated, and Terri did not wake up immediately after the surgery.  After ten days, Terri still had not awakened and her intracranial pressure spiked to very high levels, causing brain death.

At this time, Terri’s medical team approached her family asking them to make a very difficult decision.  They had to decide whether or not to allow Terri’s organs to be donated – they knew she wasn’t really with them anymore.

“We were never going to have Terri,” said Scott, “but to have her be able to help others, even in death, meant everything to us”.

To honor Terri’s wishes, her organs were donated, saving lives as she had done so many times before as a neonatal intensive care nurse at Egleston.  Terri was very loved among many – over 700 people were present at her funeral.

Although Scott knows that the individuals who received his sister’s organ are grateful for their gift of life, he says “It also means a lot to us, the donor family, to know that Terri is able to live through others”.

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Help Us Honor Nurse Allison Batson and Her Gift of Life – Vote Today!

Nurse Allison Batson, Patient Clay Taber

Nurse Allison Batson with Clay Taber

Every once in awhile, you meet someone so special that they become part of you forever. For 23-year-old Emory kidney transplant patient Clay Taber, that person is Allison Batson – literally.

A few months ago, we told you the story of a transplant nurse at Emory University Hospital, Allison, and her selfless donation of one of her kidneys to Taber last January, a gift that likely saved him months on dialysis — if not his life. Allison and Clay met when he was an inpatient at Emory University Hospital fighting a rare disease called Goodpasture’s Syndrome, a life-threatening autoimmune disorder characterized by kidney disease and lung hemorrhage. Allison saw more than a patient in Clay.  She saw her own children, all close to Clay’s age.

“I learned more about Clay, his family, his life, what he saw for his future,” Allison recalls. “He wanted to get married to his sweetheart. He’d just graduated from college. The whole world was his, with the exception of this incredibly rare illness that hit him out of the blue. I have children his age, and I felt the same kind of pain his mother was feeling. Something inside me said I needed to do more.”

Though Clay’s blood type is rare, Allison was tested to be a donor and proved to be a match. On Tuesday, January 10th, Allison’s kidney was removed and transplanted into Clay’s body. Nearly half a year later, Clay has recovered well, even finding a weekend in June to marry his college love.

Though Allison has never asked for special treatment or even a hint of recognition, her colleagues recently submitted her profile to Johnson  & Johnson’s Amazing Nurses Contest. She was selected as one of 10 finalists. Voting is now up to the public. If Allison wins, she’ll receive a trip for two to Los Angeles to attend the 2012 CNN Heroes: An All-Star Tribute live broadcast show, courtesy of CNN.  Though a trip to sunny LA is quite a prize, Allison has a bigger gift in mind.

“I am once again humbled by this nomination and very excited to be recognized,” says Allison. “But more than that, my hopes for this contest are that it will spread the word about the Living Donor program.  There are more than 90,000 Americans on the waiting list for a kidney transplant. That’s 90,000 too many. Relatives, loved ones, friends and even strangers can give this lifesaving gift.”

To vote for Allison, visit http://www.amazingnurses.com. Voters can cast one vote per day until Sept. 28. The winner will be announced December 2 at the CNN Heroes: An All-Star Tribute live broadcast.

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Donate Life Month “Thank You” from Joe Persichetti

Joe Persichetti transplant patient
Dear Donor Family,

It has been eight years since my life saving heart transplant, and once again, I want to thank my donor and donor family for the gift of life.

I suffered my first of three heart attacks at age 40, and for eighteen years I struggled with heart disease. At age 58 my heart was failing and I was told that I would need a heart transplant to live. I was put on the on the transplant list and waited at home for four months. Waiting and not knowing if the call would come in time. At that point I did the only thing I knew how to do, pray.

When the call did come that there was a heart for me, all I could think about was that someone I never met was going to save my life.

I never imagined that I would enjoy this quality of life. I am using my new life to bring awareness to the importance of organ donation, and mentoring others who are waiting for a life saving transplant. I am determined to give back and celebrate life in honor of my donor.

My family and I are always thankful for each day we have together. I am playing golf and enjoying life to its fullest. I truly must say that my greatest joy is the time I spend with my seven grandchildren. As I hold them close to me I am grateful I have the chance to watch them grow. They are the joy of my life and I am truly blessed.

As always your family and my donor are in my heart and daily prayers forever.

There is no greater gift then the gift of life you shared with me.

Sincerely,
Joe

 

Donate Life Month “Thank You” Message from Terri Lynne

Terri Lynne

My donor was an 11 year old girl from Arkansas; that is all I know of her but not a day has ever gone by that I haven’t thought of her. Words will never begin to explain enough what has been given to me.


I believe I was given more than just a liver; I have her legacy. Even if I don’t know her name, her existence and memory is alive in me. My liver isn’t just an organ to me; it is a part of her.”

 

You can share Terri’s story here.

If you haven’t signed up to become a donor yet and are needing more information, please visit Donate Life.

Celebrating the Gift of Life – Donate Life Month

Since 2003, April has served as National Donate Life Month and provided the health and transplant communities with an entire month of local, regional and national activities to help support and raise awareness around organ donation and celebrate those who have given the gift of life to others by donating. We’ve seen some amazing gifts of generosity here at Emory since National Donate Life Month last year, and in honor of the month, we’d like to celebrate those members of our community who have truly given of themselves in an effort to save the lives of others.

Pamela Emory Employee Living Donor

Pamela Lesane

We kicked off Donate Life Month last year with the help of Pamela Lesane, an Emory Healthcare employee and now patient, after making a very generous gift to her own sister. After beginning her career with Emory Healthcare in Guest Services, Pamela came into contact with a transplant coordinator who asked her if her sister, who had suffered from kidney disease all her life, had ever been evaluated for a transplant. She had not, so Pamela helped her push forward in getting evaluated and her sister was placed on the waiting list for a kidney transplant. It turned out Pamela would be a match for her sister’s transplant, and the rest is history. You can read more on Pamela’s story here.

Shortly after Pamela was able to help bring renewed life to her sister via organ donation, six lives at Emory were saved by as a result of a selfless donation from one man, Jon Pomenville, from Anderson, South Carolina. Imagine waking up one morning in good health and deciding out of the goodness of your heart to donate your kidney to someone you didn’t even know – anyone, anywhere. That’s exactly what Jon did and he wasn’t looking for credit. In fact he was completely comfortable with remaining anonymous throughout the process. But during a follow-up visit to Emory University Hospital, Jon met many of the individuals whose lives he helped change – right there in the transplant clinic waiting room. Jon and four of the other donors and recipients in what is referred to as a paired kidney transplant were coincidentally scheduled for follow-up appointments within a short period of time of one another. It was only a matter of minutes before the patients – recipients and donors – two father and son combinations and Jon, the man who would give to anyone – were hugging, shaking hands, and recounting their lives and experiences. As one person began recounting the experience, eyes and ears began to focus on the tale being told from across a crowded room. Share Jon’s story.

Lester Crowell

Lester Crowell

Many of our transplant community members are recipients of organ donations themselves and have opted to find ways to give back to others in need. Lester Crowell, is a fantastic example of an Emory Transplant patient who took giving back to a whole new level. Lester is a two-time recipient of a donated heart, and as a heart transplant patient, he shared the love in a major way by holding an event to help raise awareness and over $30,000 for the Georgia Transplant Foundation. Check out Lester’s story in this video and blog post.

Kevin Jordan Wake Forest Kidney Transplant at Emory

Coach Tom Walter & Kevin Jordan

We’ve seen family members give to family members, anonymous givers donate life to change the lives of others, and a transplant patient who gave back to the community, but one story, that of Kevin Jordan and Coach Tom Walter of Wake Forest University was an especially touching one for us here at Emory. In February of 2011, we shared Part I of their story. To bring you up to speed, Kevin was diagnosed with ANCA vasculitis, an autoimmune disorder that typically leads to almost immediate kidney failure. At the time, Kevin was an all-star baseball player being actively recruited by both Wake Forest University (WFU) and Auburn, but he was faced with an illness that could potentially change his future not only in baseball, but in life. Kevin opted to join the crew at Wake Forest, but as his condition worsened, it became clear to both Kevin and Coach Tom that something would need to be done. Kevin was in desperate need of a new kidney, and when neither his mother nor father met matching criteria to serve as a living donor, Coach Tom volunteered to be tested as a match. A match he was, and the story is pretty much a fairytale from there. Just months after joining the Wake Forest crew, Kevin and his coach would share a lifelong bond, making them family both on and off the field. In October of this year, just 7 months later, Kevin was able to return to practice at the sport he loves thanks to the generous gift of Coach Tom. Share their story here.

Clay Taber, Transplant Patient with Nurse Allison Batson

Clay Taber & Allison Batson

The giving back here at Emory continued when just a few months ago, our own transplant nurse, Allison Batson, gave of herself, literally, to 23-year-old patient, Clay Taber, who was in desperate need of a kidney transplant. “Immediately when Clay came onto our unit, he became a special patient that everyone just gravitated to,” said Allison Batson. “Here was this young man with everything in his life ahead of him, and he was fighting for his life. He quickly became friends of many of the staff, and really was just a tremendous inspiration to us all.” Allison continued to visit with Clay during his weeks at the hospital, and a deeper connection began to form than the typical nurse-patient bond. “She said ‘If you’ll let me do this, I want to donate my kidney to you,” Clay recalls. “Something at that point just hit me. There are so many people in need of an organ transplant and have been waiting like me – even longer than me in many cases. And here is Allison offering to do this amazing thing. When she said ‘If you’ll let me,’ there was just something in those words. I couldn’t say no.” Share Allison and Clay’s story here.

We are so grateful to the steps that have been taken by the Emory transplant community to celebrate and give the gift of life. Countless lives are changed at the Emory Transplant Center every year because of selfless gifts of those in our community. In honor of Donate Life Month, we will help to spotlight some of these very special stories in the weeks to come. If you have your own story to share, or just want to give thanks to those here who have given the gift of life, please use the comments section below.

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A Mother-Daughter Transplant Story – Angie Dudley, Bakerella

There are many things a mother can pass along to her daughter, but it takes a unique generosity—not genes—for a mother to give her daughter a kidney. In June, Angie Dudley, owner of the blog, Bakerella, and creator of cake pops, received her second kidney transplant from none other than her own mother, Sandy Cunningham. Although this is not Angie’s first transplant experience, she says her mother has, from day one, offered to be her organ donor.

Transplant Patient Angie Dudley & Mother, Sandra Cunningham

Transplant patient, Angie Dudley, with her mother, Sandy Cunningham.

Angie was diagnosed with Focal Sclerosing Glomerulonephritis (FSGS) in April of 1991 after a routine doctor visit led to kidney biopsy. It was found to be heavily scarred, and by October, Angie was undergoing dialysis and on the waiting list for a kidney transplant.

“My mom was very proactive in trying to get on the [donor] list,” Angie said, but doctors suggested they wait for a kidney from a cadaver. “I didn’t want to make my mom go through that because they told me in half the cases of my disease, it reoccurs.”

After 10 months of continuing peritoneal dialysis—all while attending college and working part-time— Angie received her first kidney transplant at just 20 years old.

Dr. Christian Larsen, MD, PhD, performed both of Angie’s transplants. “I was so happy with what [Dr. Larsen] did,” Angie said. She was glad to see that the incisions from her first surgery healed with minimal scarring, which she attributed to Larsen’s thoughtfulness. But she didn’t expect that after nearly 19 years of health, Larsen would have to operate on her again.

Near the end of 2010, things took a turn when Angie’s symptoms resurfaced. Doctors determined she would likely need a second kidney transplant.

“I guess I really thought my kidney would last as long as I would,” Dudley said. “It was kind of overwhelming emotionally to think about losing it because it had been with me for so long. I didn’t want it to go bad not because I wouldn’t be willing to have another kidney, but there was a life sacrificed for that.”

Her mother had already begun emailing doctors again, seeking approval to be Angie’s organ donor. “This time [my mom] was adamant about being the donor,” Angie said. “I don’t think I could’ve stopped her if I wanted to.”

After taking various tests and retests, Sandy Cunningham finally received the news she’d been waiting for: She was approved be her daughter’s kidney donor. “That was just the most awesome day of my life,” Sandy said. “It still is.”

On June 14, both mother and daughter underwent surgery for the transplant. “I was most worried about my mom being the donor,” Angie said. “I didn’t want anything to happen to her.”

Angie’s mom, on the other hand, was confident. “While I might’ve been nervous, I pushed it all aside because that was the very best resource that we had,” she said. “We were doing the best thing we could do. Had I died doing that, it would have been fine. I truly feel that way, and I would do it again.” But her daughter objects, “I would go on dialysis again if there was any risk of that,” she insisted.

Knowing she wouldn’t be able to walk for a few days, Angie insisted on seeing her mother right after the surgery. “[The staff] wanted to take me to my room, and I said, ‘No, wheel my bed into her room so I can see her.’”

Dr. Nicole Turgeon, MD, assistant professor of surgery at the Emory Clinic, operated on Angie’s mother and said Sandy couldn’t have had a better donor. “The bond that these two share was very striking,” she noted. “The love they have for each other is remarkable.”

Dr. Turgeon also commended Angie for her accomplishments as a baker. “[She] does some really neat things with Bakerella,” Turgeon said. “The fact that she can have kidney disease and still be so creative and contribute to society in such a way that you would never know she even had kidney disease is what was most striking to me.” Dudley began blogging in 2007, but her Bakerella site went viral after she posted pictures of her cake pops, an adorably enticing treat she concocted herself. Since then, her aptitude for creative baking has landed her on the Martha Stewart Show, as a judge in various baking competitions, and even on the red carpet at the Emmys, thanks to Duncan Hines.

Angie’s website, www.bakerella.com, receives almost three million page-views each month, and she also published a a New York Times best-selling book, appropriately titled Cake Pops, which will soon be available in four different languages.

Not surprisingly, her mother’s generous nature reflects in Angie’s work. “What turned into something for me has turned into something to give other people,” she stated.

“How much her mom was willing to promote and care for her…was probably a big part of why she was successful and had the ability to live a normal life despite having kidney disease,” Turgeon said of Angie. “I think that’s a tribute to her mom.”

And no matter how succsesful she becomes, Angie agrees that she will, first and foremost, always be her mother’s beloved daughter.

Kevin Jordan Returns to WFU Baseball Practice After Kidney Transplant

Kevin Jordan Wake Forest Kidney Transplant at EmoryIn February of this year, we shared with you a story of two amazing people, Kevin Jordan, a 19-year-old Wake Forest University baseball player, and his coach, Tom Walter, aka Coach Tom. To bring you up to speed, Kevin was diagnosed with ANCA vasculitis, an autoimmune disorder that typically leads to almost immediate kidney failure. At the time, Kevin was an all-star baseball player being actively recruited by both Wake Forest University (WFU) and Auburn, but he was faced with an illness that could potentially change his future not only in baseball, but in life. Kevin opted to join the crew at Wake Forest, but as his condition worsened, it became clear to both Kevin and Coach Tom that something would need to be done.

Kevin was in desperate need of a new kidney, and when neither his mother nor father met matching criteria to serve as a living donor, Coach Tom volunteered to be tested as a match. A match he was, and the story is pretty much a fairytale from there. Just months after joining the Wake Forest crew, Kevin and his coach would share a lifelong bond, making them family both on and off the field.

Kevin and Coach Tom came to Emory for the living donor kidney transplant, where transplant surgeons Dr. Kenneth Newell and Dr. Allan Kirk performed the procedure that not only gave Kevin renewed hope in life, but renewed hope that he would indeed return to the baseball diamond.

Fast forward seven and a half months later to today, Kevin is back and in good health, and the outfielder just attended the first Wake Forest Fall baseball practice of the year. Kevin’s recovery was not the only thing that’s proven to be speedy. Kevin ran the 60 yard dash in just 6.5 seconds, proving he has regained his health, strength, and speed. Kevin’s journey has struck a chord with people around the country, including those in the transplant community and sports communities. ESPN film crews attended the first WFU baseball practice of the year to share his progress with the country.

Our own Emory family members, particularly those who helped facilitate the kidney transplant from Coach Tom to Kevin have been equally touched and inspired by the story. “Kevin is a remarkable human being. And I think that’s one of the centerpieces of this story,” Dr. Allan Kirk, one of Kevin’s transplant surgeons said at the post-transplant press conference back in February. His recovery since that day has been equally as inspiring and remarkable, “when Kevin came to us, he was in bad shape, but he never lost hope. What he went through could have very easily derailed his plans. He’s a fighter. Coach Tom saw that in him, and so did we. Both myself and Dr. Newell have been touched to play a part in helping Kevin return to the sport that he loves, and in bringing a coach, player, team and community together to rally around someone who is truly a remarkably inspiring person. We’re very much looking forward to seeing what he accomplishes in the years to come,” remarks Dr. Kirk.

Read more on Kevin’s journey & his kidney transplant.

One Good Transplant Deed Leads to Six Changed Lives

Imagine waking up one morning in good health and deciding out of the goodness of your heart to donate your kidney to someone you didn’t even know – anyone, anywhere. That’s exactly what Jon Pomenville of Anderson, SC, did recently. Little did he know, it would result in the drastic change of the lives of six individuals and their families.

Jon wasn’t looking for credit. In fact he was completely comfortable with remaining anonymous throughout the process. But during a recent visit to Emory University Hospital for a post-surgical follow-up, Jon met many of the individuals whose lives were changed – right there in the transplant clinic waiting room. Jon and four of the other donors and recipients in what is referred to as a paired kidney transplant were coincidentally scheduled for follow-up appointments within a short period of time of one another. It was only a matter of minutes before the patients – recipients and donors – two father and son combinations and Jon, the man who would give to anyone – were hugging, shaking hands, and recounting their lives and experiences. As one person began recounting the experience, eyes and ears began to focus on the tale being told from across a crowded room.

The Emory Transplant Center opened its Paired Donor Kidney Exchange Program in 2009, providing greater hope for patients in need of kidney transplants. A paired exchange donation is a process that allows healthy individuals to donate a kidney to either a friend, loved one, or even altruistically to a stranger, as was the case with Jon, despite incompatible blood matches. In paired donation, a donor and recipient are matched with another incompatible donor and recipient pair and the kidneys are exchanged between the pairs.

Paired donation is another form of living donor transplantation, which means the donated organ may come from a living person such as a friend, spouse or family member. Donated kidneys also come from recently deceased donors. While most kidneys from deceased donors function well, studies have shown that a kidney from a living donor, either a blood relative or an unrelated person, provides the greatest chance for long-term success.

Because of Jon’s donation, a young 7 year-old boy named Zion received a life-saving kidney from an unrelated donor because his dad, Mike, was able to donate. And Gerald Smith of Five Points, AL, received his life-changing kidney transplant because his son, Matt, a recent University of Alabama graduate, donated his kidney – to Zion. And lastly, 20 year-old Edward Hill of Macon, GA a young man with a history of health challenges, would also receive his kidney transplant (from an unknown donor) at Children’s Healthcare of Atlanta – completing the six-person cycle.

6 Person Paired Kidney Exchange

The decision Jon made to altruistically donate his kidney to a any person, anywhere set off a chain reaction that has drastically improved and changed lives. As the mother of one kidney recipient put it, “when we received that call a few weeks ago, it truly was a miracle. The donor program at Emory is an incredible thing that will help many people like my son, and I am as thankful as anyone could ever be because of it.”

The donor program at Emory is incredible, but without people like Jon Pomenville, and generous selfless acts of kindness such as his decision to donate his kidney, stories like this would not be possible. For more on this amazing story and the lives touched by Jon’s decision to donate, watch our short video below: