Posts Tagged ‘kidney transplant’

Emory Transplant Center Takes Part in Second Largest Kidney Swap in History: 28 people Now Have a New Lease On Life

Kidney swap patients Troy Milford & Robert PooleAs a former pastor, Troy Milford had spent years counseling his congregation through the joys and challenges of their lives. But, as it turns out, he was quietly dealing with a challenge of his own.

In 1997, he was diagnosed with polycystic kidney disease. Though he felt well on dialysis, he knew he’d eventually need a kidney transplant. In 2010, he was placed on the waiting list for a kidney transplant. Several of Troy’s family members were tested in hopes of donating their kidney to him, but they were not matches. Troy’s friend and parishioner, Robert Poole was then tested, but he wasn’t a match either. That’s when Robert (pictured right with recipient Troy Milford) learned about the Kidney Paired Donor Exchange Program at Emory University Hospital.

“Emory began its Kidney Paired Donor Exchange Program in 2010, and we have been participating in the National Kidney Registry since 2012,” says Nicole Turgeon, MD, associate professor of surgery, Emory University School of Medicine and surgical director of the Paired Donor Exchange Program. “Paired donor exchange gives patients an opportunity to receive a living donor kidney transplant from a loved one or friend, despite incompatible blood types and positive crossmatches. In paired donation, a donor and recipient are matched with another incompatible donor and recipient pair, and the kidneys are exchanged between the pairs. This was the case with Mr. Poole and Mr. Milford, and the basis of how Chain 221 worked.”

Map of Kidney Transplant SwapTroy and Robert are now part of the world’s second largest kidney swap in history, and the largest kidney swap to be concluded in less than 40 days. Named “Chain 221” by the National Kidney Registry, the chain involved 56 participants, which facilitated 28 transplants in 19 transplant centers across the country, including the Emory Transplant Center. A Good Samaritan donor, also known as an altruistic donor, initiated Chain 221 in Memphis on April 30, 2013, and the chain ended just five weeks later, on June 5, in Cleveland, Ohio.

Both Troy and Robert underwent surgery on April 30 at Emory University Hospital. That day Troy received his new kidney, while Robert donated his kidney to another person half way across the country, also in need of the new organ. Both men are doing well after their surgeries.

“Words can’t say how it made me feel that Robert, who’s not even related to me, would do this for me,” says kidney recipient Troy. “I am one of 28 people who has a new kidney, and a new outlook on life, thanks to this swap. That’s what God can do. He can work miracles.”

“Troy is a good friend and special person,” says Robert, who manages a golf course in Canton. “He was too proud to ask for help, even when he was sick, so I am really happy I could assist. It didn’t matter to me if I gave to someone I knew or to someone across the country. I was just thrilled to donate on behalf of Troy.”

According to Dr. Turgeon, there are currently more than 100,000 people on the kidney transplant waiting list. The discrepancy between the number of organs available and the number of people on the waiting list continues to grow. “Ultimately we want to bring awareness to living and deceased donation with this story,” Turgeon explains.

Since the Kidney Paired Donor Exchange Program began at Emory, the hospital’s surgeons have performed 27 kidney transplants. The Emory Transplant Center is the state’s largest transplant center performing the highest volume of kidney transplants in Georgia. In 1966, Emory performed the first Georgia kidney transplant. To date, the Emory Transplant Center has performed more than 4,300 kidney transplants, with 247 kidney transplants performed in 2012.

Visit the Emory Kidney Transplant Program website for more information on the Emory Paired Donor Exchange program.

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Six Lives Connected through Paired Donor Kidney Exchange

Living Organ DonationThe Emory Transplant Center played a role in a 6-chain kidney swap that will forever bind 6 individuals.  Maya Cosola wanted to donate a kidney to her aunt but was not a compatible match.  So she agreed to be a part of paired donor kidney exchange program that allows incompatible donor and recipient pairs to be matched with other incompatible donor and recipient pairs, allowing kidneys to be exchanged between these pairs. A match between pairs was arranged, and Maya’s kidney was flown to someone in North Carolina, and thus began the 6-chain exchange across 4 states.

Share their touching story in this video from Fox 5 below:

Visit the Emory Kidney Transplant Program website for more information on the Emory Paired Donor Exchange program.

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Emory Transplant Center is a Top 10 Transplant Center in the U.S.

Living Organ Donation Donate Life MonthThe latest data from OPTN/UNOS of adult organ transplants performed in 2012 show that the Emory Transplant Center performed 426 transplants, making it the largest transplant center in the state and the 10th largest in the country. If we add the 60 pediatric transplants performed at Children’s Healthcare of Atlanta, the ETC is the 5th largest transplant center in the country.

Of course, the ETC is much more than these numbers, but volume is one indication of just how busy our center is — and our programs are growing. In 2011, Emory performed 360 adult and 70 pediatric transplants. That means the total number of transplants increased 13% from 2011 to 2012. Each program is growing, too. The kidney program expanded from 204 transplants in 2011 to 230 in 2012, and the liver program grew from 93 transplants in 2011 to 111 in 2012. There were 11 kidney and pancreas transplants at the ETC in 2011 and 17 in 2012. The heart team transplanted 23 in 2011 and 34 in 2012, and the lung program transplanted 29 in 2011 and 34 in 2012.

This accomplishment never would have been possible without the gracious gifts of life organ donors provide to our transplant recipients. We are ever grateful to the donors who have indicated their wishes and the families that have made the decision to donate and save or restore the lives of our patients.

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Kevin Jordan and Coach Tom Still Hitting Homeruns

Kevin Jordan Wake Forest Kidney Transplant at Emory

The gift of giving is rewarding on many levels. Giving doesn’t have to be monetary or flashy; in fact, taking the extra step to register and give the gift of life can be the most rewarding gift ever.

Take for example two of our patients, Kevin Jordan and Coach Tom Walter. In 2011, Kevin was diagnosed with ANCA vasculitis, an autoimmune disorder that typically leads to almost immediate kidney failure. At the time, Kevin was an all-star baseball player being actively recruited by both Wake Forest University (WFU) and Auburn University, but he was faced with an illness that could potentially change his future, not only in baseball, but in life. Kevin opted to join the crew at Wake Forest, but as his condition worsened, it became clear to both Kevin and Coach Tom that something would need to be done.

With only a 15% chance of a non-family member making it through the organ transplant matching to donation process, Coach Tom stepped in, armed with a goal and a healthy kidney to donate , he got tested to see if he was a match to serve as Kevin’s donor. The chances of Coach Tom’s kidney being a viable option for Kevin were slim, but… what if? Coach Tom proved to be a viable organ donor for Kevin, and without hesitation, he agreed. You can read more about their story here.

After going through with the transplant, both Kevin Jordan and Coach Tom Walter are doing fine. So great, in fact, that they recently came back to Atlanta with the rest of the Wake Forest Baseball team, who was in town to take on the Georgia Tech Yellow Jackets! It seems that Kevin and Coach Tom truly continue to hit the ball out of the park!

April is National Donate Life Month, register today to be an organ donor and give the lasting gift of life.

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Sherrell Gay Receives the Gift of Life Just in Time to Witness New Life

Sherrell Gay, Double Transplant Patient

Sherrell Gay

If you remember reading about kidney transplant recipient Ken Sutha and his participation in the U.S. Transplant Games, you might also remember reading about Sherrell Gay, who received her heart at the Emory Heart Transplant Center and also participated in the games. In fact, Sherrell celebrated the 8-year anniversary of her transplant procedure during the Games’ closing ceremonies.

Although Sherrell (who’s originally from Waynesboro, GA) received her first heart transplant a decade ago, for the past 18 months, she has been on the waiting list for another heart due to allograph vasculopathy, a fairly common long-term complication from heart transplant. Allograph vasculoplasty is known more commonly as chronic rejection, which can develop in transplanted hearts at any time – soon after transplant or many years later. The small vessels in the heart become blocked first and as the disease progresses, the larger vessels can become blocked too. “I was diagnosed with allograph vasculpathy at my 7 year annual post-transplant appointment,” Sherrell recalls. “I was treated with medication for 1 ½ years and then the team decided the disease had progressed too far to benefit from drug therapy and I needed to be evaluated for another heart transplant.”

Both throughout her first heart transplant journey and while Sherrell was hospitalized for a portion of 2012, her kidney function continued to decline. “As my wait time continued, my kidney failure worsened, as did my heart function,” Sherrell recalls. Emory’s kidney transplant team was asked to consult on her case, and they concluded that after Sherrell had spent 10 years on immunosuppressants and her kidney function was in decline for almost a decade, her kidneys were in end stage kidney failure. They added Sherrell to the kidney transplant waiting list, knowing that the other option was a potential lifetime on dialysis following her next heart transplant.

Thankfully, Sherrell was contacted about her waiting list status and learned she would be receiving her new heart and two kidneys from the same organ donor. “On the day I got the call there were organs matched for me, I had to start emergency continual dialysis. The organs became available at just the right time,” she says, and “by doing both organs from the same donor, I stood a better chance at successfully living healthy.”

On December 9, 2012, Sherrell received her successful double organ transplant and is now recovering and doing well. Dr. Duc Nguyen performed her heart transplant first, and Dr. Paul Tso performed her kidney transplant immediately after.

While Gay spent much of 2012 at Emory, this mother of two daughters and one son never missed a chance to help cheer up and educate other candidates and recipients and families about the transplant process from her bedside, except, of course, when she was most sick. (At the worst point, she suffered two heart attacks and was placed on emergency peritoneal dialysis.) If such a thing were awarded, Gay would win the Oscar for the Best Advocate Ever for Organ Transplantation.

“I am extremely grateful for my donor family who made the decision to make that donation of life — we got the best gift that day,” says Gay, who also helps lead the Georgia Transplant Foundation Mentor Project.

We are very glad to hear about Sherrell’s remarkable recovery and send her best wishes on her continued recovery and on the upcoming arrival of her first grandbaby. Thanks to her double organ transplant, Sherrell is now well enough to be by her daughter Tracy’s side when she gives birth at the end of March.

The gift of life just in time to witness the gift of a new life; now that is a transplant miracle.

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For Ed Mann & Felicia Henderson, It’s a Small World After All

Ed Mann Felicia Henderson Living Donor Kidney Transplant

Ed Mann and Felicia Henderson on a recent visit to the Emory Transplant Center.

As a physical education teacher, every day Ed Mann helps keep the children of Mount Zion Elementary School in Carrollton, GA in tip-top-physical condition, but ironically, his own health has been suffering for the past three years. In 2009, Ed was diagnosed with scleroderma, an autoimmune disease that resulted in a decline in his heart and pulmonary health initially, but then, took a toll on his kidneys. As a result, six hours of every one of Ed’s days was spent undergoing dialysis treatments. And despite his declining health and ongoing medical needs, he still didn’t missed a single day of work.

After seeking a kidney donor via traditional methods to no avail, one day a few months ago, Ed had an idea that he called “a shot in the dark,” but it was a decision that proved to be much more than that. Ed posted a message on Facebook, “Just a little advertising. Still need a kidney. 404-712-4450.”, which is the phone number of the Emory Kidney Transplant Program. A shot in the dark turned into an even more unlikely set of circumstances when the person who answered Ed’s call for help was not only a fellow employee at Mount Zion Elementary, but also Ed’s longtime friend of 16 years, Felicia Henderson.

Not knowing whether she would be a match for Ed, “I just called the number,” recalls Felicia. And after undergoing the necessary testing, the team at the Emory Transplant Center confirmed that Felicia was indeed a match to be Ed’s kidney donor. Upon receiving the news, Felicia immediately committed to being Ed’s donor, “People that are able to give a kidney live longer than the average person, not because they have given a kidney, but because they were healthy enough in the first place to be able to do it.”

Because of Felicia’s gift of life, Ed will continue to coach and teach the children of Mount Zion Elementary how to stay physically fit. “The gift of life. I know I’ve got so many good friends. Very thoughtful, very kind.”, he says.

Felicia and Ed’s transplant operation took place exactly two months ago today, on November 16, 2012. Since the surgery, both Ed and Felicia are doing well. They spent time with their families over the holidays celebrating renewed health and the gift of life, and have both returned to work at Mount Zion Elementary.

When we asked Ed if there is anything he would like to say to Felicia, he told us, “Yes. I would like to tell her thank you for saving my life. You are the most thoughtful and kind person I know, and I appreciate what you did for me.”

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Emory Transplant Center Performs First Triple Organ Transplant Procedure in Georgia

The team at the Emory Transplant Center has performed more organ transplants in the state of Georgia than any other transplant center. Because the Georgia community trusts the expertise of our transplant team, we have performed some of the most complex transplant procedures in the area. Our team performed the first hand transplant in the state of Georgia and the Southeast, for example, and we’ve performed over half of the multi-organ transplants in Georgia. While you’ve seen us share stories like that of Jo Ellen Kimball and her double lung transplant, multi-organ transplants are rare, making up just over 1% of all transplant procedures conducted in Georgia since 1988. But even more rare, is a double transplant involving a heart and a liver, with only 60 of these procedures having been performed in the U.S. And even more rare, a triple transplant, involving the transplantation of a heart, liver and kidney.

Stephanie Lindstrom

Stephanie Lindstrom

Today, thanks to a triple organ transplant, a 37-year-old mother of two in Georgia is celebrating Christmas with a renewed spirit of hope and thankfulness this year. Just five months ago, Stephanie Lindstrom received a triple organ transplant at Emory University Hospital, the first triple transplant ever to be performed in the state of Georgia.

Following a lifetime battle of congenital heart complications, Stephanie’s condition became critical this summer when she was told she would need not only a new heart, but that she would also need a new liver and kidney. All other interventions to help her were not successful.

“Because of Stephanie’s heart failure, she developed liver failure. Then she became septic, which led to kidney failure. So a triple organ transplant was our only hope to save her,” says Stuart Knechtle, MD, professor of surgery at Emory University School of Medicine and director of the Adult Liver Transplantation Program.

Stephanie, a former marathon runner, was born without a tricuspid valve, which helps move blood through the heart in the right direction. She had four surgeries as a child to repair the problem. After she graduated from college, more heart valve problems occurred, but this time, with her mitral valve. Doctors diagnosed Stephanie with mitral valve regurgitation and said it needed to be corrected.

Stephanie, who lives in South Carolina, scheduled an appointment with Wendy Book, MD, associate professor of medicine at Emory and medical director of Emory’s Adult Congenital Heart Disease Program. “When I first met Stephanie, I immediately knew she was a resilient, strong willed person who was a fighter,” says Dr. Book. “We knew her heart and liver were in bad shape because of her congenital complications, but problems with her kidney had not yet surfaced.”

In September 2011, Stephanie was placed on the waiting list for a heart and a liver. In May 2012, she contracted cytomegalovirus, and was admitted to the hospital to be put on dialysis and breathing machines. At that point, she was moved up on the waiting list for her new organs, which now included a kidney.

On July 7, 2012, doctors got the call that a match had been found for Stephanie. On that day, both her heart and liver were transplanted during a lengthy surgery.

First Brian Kogon, MD, surgical director of the Adult Congenital Heart Disease Program transplanted her new heart, assisted by David Vega, MD, director of Emory’s Heart Transplant Program. Then Knechtle and transplant surgeon Andrew Adams, MD, transplanted the liver. The following day, Knechtle transplanted her kidney. All three organs came from the same donor.

“The risks for a triple organ transplant are very high for a patient with a three-system failure, and one we had never attempted before,” says Kogon. “Her previous surgeries and critically-ill state at the time of the transplants made things challenging. But Mrs. Lindstrom’s age and determination to survive made her an ideal candidate for these procedures.”

Stephanie spent the next three months at Emory University Hospital recovering, while battling complications. She was able to return home in October 2012, five months after she was admitted.

“I am so grateful to the doctors, nurses and support staff who made these transplants possible,” says Stephanie. “They have given me a new lease on life. The holiday season has truly taken on such a special meaning to my family and me this year because of the many gifts we have been given.”

Help Us Honor Nurse Allison Batson and Her Gift of Life – Vote Today!

Nurse Allison Batson, Patient Clay Taber

Nurse Allison Batson with Clay Taber

Every once in awhile, you meet someone so special that they become part of you forever. For 23-year-old Emory kidney transplant patient Clay Taber, that person is Allison Batson – literally.

A few months ago, we told you the story of a transplant nurse at Emory University Hospital, Allison, and her selfless donation of one of her kidneys to Taber last January, a gift that likely saved him months on dialysis — if not his life. Allison and Clay met when he was an inpatient at Emory University Hospital fighting a rare disease called Goodpasture’s Syndrome, a life-threatening autoimmune disorder characterized by kidney disease and lung hemorrhage. Allison saw more than a patient in Clay.  She saw her own children, all close to Clay’s age.

“I learned more about Clay, his family, his life, what he saw for his future,” Allison recalls. “He wanted to get married to his sweetheart. He’d just graduated from college. The whole world was his, with the exception of this incredibly rare illness that hit him out of the blue. I have children his age, and I felt the same kind of pain his mother was feeling. Something inside me said I needed to do more.”

Though Clay’s blood type is rare, Allison was tested to be a donor and proved to be a match. On Tuesday, January 10th, Allison’s kidney was removed and transplanted into Clay’s body. Nearly half a year later, Clay has recovered well, even finding a weekend in June to marry his college love.

Though Allison has never asked for special treatment or even a hint of recognition, her colleagues recently submitted her profile to Johnson  & Johnson’s Amazing Nurses Contest. She was selected as one of 10 finalists. Voting is now up to the public. If Allison wins, she’ll receive a trip for two to Los Angeles to attend the 2012 CNN Heroes: An All-Star Tribute live broadcast show, courtesy of CNN.  Though a trip to sunny LA is quite a prize, Allison has a bigger gift in mind.

“I am once again humbled by this nomination and very excited to be recognized,” says Allison. “But more than that, my hopes for this contest are that it will spread the word about the Living Donor program.  There are more than 90,000 Americans on the waiting list for a kidney transplant. That’s 90,000 too many. Relatives, loved ones, friends and even strangers can give this lifesaving gift.”

To vote for Allison, visit http://www.amazingnurses.com. Voters can cast one vote per day until Sept. 28. The winner will be announced December 2 at the CNN Heroes: An All-Star Tribute live broadcast.

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Kidney Patients Can Now Receive Pre- and Post-Transplant Care Closer to Home

Emory Transplant CenterBeginning in May 2012, the Emory Transplant Center will provide pre- and post-transplant services for renal patients in northwest Georgia at our new location in Cartersville. Along with our two existing satellite offices in Savannah and Dublin, the new office in Cartersville means that more Georgians can receive kidney transplant evaluations and follow-up care from Emory professionals without making a trip to Atlanta.

Emory’s Kidney Transplant Program:

  • Provides comprehensive evaluations for kidney and pancreas transplantation, as well as state-of-the-art transplant follow-up care
  • Offers a highly skilled team of specialists in the care of kidney transplant patients and living donors
  • Ranks as one of the top programs of its kind in the country, with success rates higher than expected for both patient and graft survival*
  • Performed 215 kidney transplant procedures in 2011 – the largest number of transplants in a single year in the history of the program

Emory Kidney Transplant Program Satellite Locations:

Emory Transplant Center –  Cartersville
(located in the Emory Heart & Vascular Center office)
970 Joe Frank Harris Parkway, Suite 280
Cartersville, Georgia 30120

Emory Transplant Center –  Dublin
(located in the Emory Heart & Vascular Center office)
2301 Bellevue Road, Suite 1000
Dublin, Georgia 31021

Emory Transplant Center –  Savannah
(located in the St. Joseph’s/Candler Hospital)
5534 Reynolds Street, Suite 212
Savannah, GA   31405

For more information about our locations and scheduling an appointment, visit our Kidney Transplant Program website.

 

*Source: Transplant by volume, Scientific Registry of Transplants Recipients (SRTR) national database

 

A Life Free From Anti-Rejection Medication Post-Transplant?

A life free from taking anti-rejection medications post-transplant…is it possible? After transplant, patients must take multiple medications to keep their bodies from rejecting the new organ. The side effects of these immunosuppressant drugs, for many, can be grueling. Side effects range from fatigue to high blood pressure to increased risk of infection. Researchers are currently evaluating whether it’s possible for kidney transplant patients to avoid use of immunosuppressant drugs post transplant. They’ve found that it’s possible that by not only transplanting the living donor organ but also some of the donor’s immune producing cells, it  may be possible to deceive the recipient’s immune system into accepting the new organ as its own.

To evaluate the likelihood of decreased reliance on immunosuppressant drugs for kidney transplant patients, researchers collect immune system-producing stem cells and other immunity cells from the living donor’s bloodstream. They infuse transplant patients with radiation and medications to wipe out part of their own bone marrow.  This allows the donated cells to squeeze in and create a sort of ‘mixed’ immunity that prevents rejection.  In essence, a kidney transplant patient would also be receiving a bone marrow transplant.

Dr. Kenneth Newell

Dr. Kenneth Newell

At the Emory Transplant Center, researcher Dr. Kenneth Newell, is compiling a registry of kidney recipients who somehow survive despite quitting the pills on their own because they couldn’t afford them or because of side effects – a truly rare case.  Thus far, Dr. Newell has discovered about three dozen of these cases.  The research team at Emory is testing these patients for biological markers that might explain why they fared well and who else is a good candidate.  This may provide clues that a completely separate part of the immune system plays a role in organ rejection/acceptance.

In the meantime, the Food and Drug Administration (FDA) approved the drug belatacept (Nulojix®) for the prevention of graft rejection after kidney transplants.  This is the first time a new class of drugs has been developed for transplant since the 1990s.  Belatacept has the potential to improve and simplify the medication regimens of kidney transplant recipients, being a less toxic alternative to calcineurin inhibitors, with fewer side effects such as high blood pressure, high cholesterol, kidney toxicity and diabetes.  It is now being offered at the Emory Transplant Center, where Emory physicians played a role in discovering this new drug.

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