Posts Tagged ‘kidney transplant’

Improving Dialysis Patients’ Lives Through Kidney Transplantation

Emory Transplant Center continues to be a leader in research by studying ways we can better bring the benefits of kidney transplantation to Georgia residents. Several Emory studies have documented that receiving a kidney transplant before dialysis, or soon after beginning treatment, can improve patient outcomes and quality of life.

A recent study conducted by the Emory Transplant Center, along with two other healthcare systems in Georgia and the Southeastern Kidney Transplant Coalition, looked at why patient referral rates from dialysis centers to transplant facilities were so low. They found that three-quarters of Georgia patients on dialysis were not even being evaluated for a possible kidney transplant within their first year of dialysis.

“The study found that fewer than 28% of Georgia dialysis patients were referred to one of the state’s three adult kidney transplant centers within a year of starting dialysis,” reports Dr. Stephen Pastan, Medical Director, Emory Kidney Transplant Program, reports.

Georgia has the lowest kidney transplant rate in the country. U.S. regulations require that all dialysis centers in Georgia inform patients of kidney transplantation as a treatment option within 60 days of starting dialysis. Yet the study identified 15 Georgia dialysis facilities that referred zero patients within one year of dialysis start. The dialysis facilities with the lowest transplant referral rates were more likely to be non-profit, have more patients, and a higher patient-to-social worker ratio. Kidney transplantation is a typically less expensive intervention than ongoing dialysis and one that also promises greater longevity and a better quality of life.

One of the first key steps for many patients to receive kidney transplantation is to hear about its life-changing benefits at a dialysis center. This study illustrates the need for further measures to improve overall referral of patients to kidney transplantation.

Learn more about the Emory Kidney Transplant Program or call us at 1-855-EMORYTX (366-7989)

iCHOOSE Kidney – An Education App for Prospective Kidney Transplant Patients

iChoose Kidney AppFor patients suffering from end-stage renal disease (ESRD), there are two major treatment options: dialysis and kidney transplant. Of these two options, medical studies have shown that receiving a kidney transplant offers a better chance of survival and quality of life, eliminating the need for hours of dialysis treatment.

Although it is required by law for clinicians or physicians to discuss kidney transplant as a treatment option for their ESRD patients, Emory epidemiologist Rachel Patzer, PhD, MPH, assistant professor of surgery, says that many eligible patients are not being referred for kidney transplantation. Through her research, Patzer found that such disparities were often present in regions outside the Atlanta area.

“There are disparities in who is getting access to that information about transplant, which I think is leading to some of the disparities we see in access to getting on the waiting list and receiving a transplant,” Patzer says.

In order to address these treatment disparities and help patients understand the best treatment option for their individual cases, Patzer and the Emory transplant team created the iCHOOSE Kidney iPad application. The iCHOOSE Kidney app is a shared-decision making tool for providers or clinicians to use with their patients to inform them about potential risks and benefits of each treatment. “The app basically walks you through different risks for treatment options,” Patzer says.

While Patzer says the optimal treatment for kidney disease is transplant, she says this depends on patients’ individualized risk profile, which includes factors such as their age and other possible medical conditions they may have.

Upon a patient’s initial diagnosis of end-stage kidney disease, physicians or clinicians can enter in patient data into the iCHOOSE Kidney app, which in turn calculates the risks of dying on dialysis versus a kidney transplant. The app calculates both relative and absolute risks based on data from a national database of almost 700,000 patients.

The app tries to keep things simple for patients by presenting data in a picture format. Patzer says illustrating information visually is one of the best ways to convey risks to patients. “Showing patients you’re going to live this many years longer or that this is 10 times better is really more powerful than just giving them the average,” Patzer says.

The app is currently being used at the Emory Transplant Center and in the surrounding community. Patzer says that the Emory transplant surgeons and nephrologists use the iCHOOSE Kidney app as part of their communication and education with patients. You can find the iChoose Kidney app by searching your App Store.

Changes to the UNOS Kidney Allocation System

Organ Donation Wait TimeThe Emory Transplant Center would like to share with our transplant community some important changes to the kidney allocation system managed by the United Network for Organ Sharing (UNOS). As many of you know, UNOS manages the nation’s organ transplant system and helps make the best use of donated organs. More specifically, the UNOS Kidney Committee had been meeting regularly to discuss an improved kidney allocation system which resulted in the UNOS Board of Directors approving a new kidney matching system that took effect on December 4, 2014.

Under the previous system, how long a person had undergone dialysis prior to being placed on the wait list did not count. But with this new system, it has changed.

“One of the major differences is that now you will be given credit for your dialysis time that will be added on to the time you’ve been on the waiting list,” says kidney transplant surgeon Dr. Nicole Turgeon of the Emory Kidney Transplant Program.

If you began dialysis before you were listed, your wait time will be backdated to the day you began dialysis. Dr. Turgeon says the new guidelines could really help many longtime dialysis patients.

Here are some important points to note with the new system:

  1. The time you spend waiting for a kidney is still a major factor in organ matching.
  2. You will not lose credit for any time you have already spent waiting.
  3. If you began dialysis or met the medical definition of kidney failure at the time you were listed for transplant, your waiting time will not change.
  4. If you began dialysis before you were listed for a kidney transplant, the time between beginning dialysis and being listed will be added to your waiting time.
  5. People who have the longest potential need for a transplanted organ and those who have been difficult to match under the current system will receive greater priority under the new system.
  6. The new system should provide more transplant opportunities, so that everyone has a better chance to be transplanted.

“It is big news for our patients. I think it’s really going to help them in terms of getting better access to transplants,” says Dr. Turgeon.

UNOS continues to monitor the system closely to make sure it is meeting the needs of patients. For more detailed information about the new kidney allocation system, visit the UNOS website at www.unos.org.

Truly Thankful – Update on Veteran Police Officer and Altruistic Donor

Raleigh Callaway

Raleigh Callaway and Chris Carroll

As you may remember, it all started with a Facebook post. Raleigh Callaway received a lot of media attention when his wife posted a message on Facebook sharing Raleigh’s need for a kidney. The post resulted in thousands of people contacting the Emory Transplant Center with offers of help. But it was one man from Texas who heard his story, and gave the gift of life – a new kidney. Chris Carroll, who lives near Dallas, says he saw the Callaway family pictured on Facebook with their two children holding a sign that read, “Our Daddy Needs a Kidney.” Chris said he felt divinely led to call to see if he could become a donor.

“I’m just blessed to be able to do it,” Carroll said in one of the many TV interviews the two have conducted after their donor and transplant operations. The media coverage has spread far and wide — from the U.S. to the U.K., Australia and Japan. You can check out some of the stories at these Atlanta outlets: AJC.com, WAGA-TV, WSB-TV, and WGCL-TV.

Carroll’s and Callaway’s surgeon, Dr. Nicole Turgeon, says they are both doing “incredibly well.” Callaway hopes to go back to his job as a police investigator in Greensboro, Ga. in a couple of months to continue to support his family. His community will be glad to have him back on the job.

As we reflect on this Thanksgiving holiday and of all that we are thankful for, let’s remember those who have given the generous donation of life through organ transplantation.

Emory Transplant Center Patients Represent Georgia in the Transplant Games of America

Transplant Games of AmericaThe competition was fierce this summer in the muggy Texas heat as Team Georgia participated in and watched athletic competitions at the Transplant Games of America at Rice University in Houston.

The team had 27 athletes representing six transplant centers from Georgia as well as 32 sports fans cheering on the athletes. The team had three donor family members, four living donors, 19 organ transplant recipients, and one cornea recipient who all brought home a total of 48 medals. Co-captains Joe Stott (heart recipient, Emory) and Sherrell Gay (heart and heart/kidney recipient, Emory) led the delegation.

We are so proud of our Emory Transplant Center athletes that we just couldn’t resist listing their names.

Here were their accomplishments:

Heart Transplant

  • Doug Austin — doubles golf (silver) and singles golf
  • Tim Lamberg — singles golf (gold), doubles golf (silver) and 5K run/walk
  • Joe Stott — singles bowling (bronze), 5K and doubles bowling
  • Richard Walker — mixed doubles tennis (gold), singles tennis, table tennis, and 5K
  • Malia Veator — 5K (gold), 1500m (gold), 100m (silver), 800m (silver), and mixed doubles tennis (gold)

Heart/Kidney

  • Sherrell Gay — cornhole game, table tennis and 5K

Kidney

  • Kevin Schneider (living donor) — singles golf (gold) and trivia games

Liver Transplant

  • Sharon Jean Cyprien — 400m (gold), 200m (gold) and 100m (silver)

Lung Transplant

  • Keith Harris — 5K and singles golf

“We feel our supporters/fans are so important to our wellbeing,” reports Gay, “so I have to mention we had two mascots. Tim Lamburg’s daughter dressed as ‘Peachy’ and Joe Stott’s 84-year-old mother-in-law was ‘Mrs. Peanut.'”

Way to go, Team Georgia!

Complete Stranger Gives the Gift of Life to a Georgia Police Officer

It all started with a Facebook post…Raleigh Callaway, a veteran Georgia police officer and patient of the Emory Transplant Center, needed a kidney transplant. Desperate to find a match as he entered the late stages of renal failure, he and his family turned to social media to find a potential donor.

The Callaways’ posted a message on Facebook sharing Raleigh’s need for a kidney and a donor. The post resulted in more than 900 people contacting the Emory Transplant Center – one of whom was Chris Carroll, a health care consultant and grandfather from McKinney, Texas. He saw the post and suddenly felt compelled to give.

After going through extensive testing to see if Chris would be a match for Raleigh, the kidney transplant surgery was performed Thursday, September 25, 2014. Emory doctors said that Raleigh and donor Chris both did “incredibly well” following the operation. Chris was discharged from Emory University Hospital on Saturday, and Callaway is expected to be discharged from the hospital on Monday.

Chris was among hundreds who contacted Emory wanting to help. Dr. Nicole Turgeon, Emory transplant surgeon who performed the operation, credits the power of social media for not just saving Raleigh Callaway’s life, but potentially many more. Of the hundreds who contacted Emory, more than 125 people are still being considered for transplant surgeries to other patients. This generous act will continue to give to other patients.

Check out the video below to learn more about this incredible story!

Happy Update – Worth the Wait

Just a few weeks ago, we told you about 23-year-old college student Kayla, who was in desperate need of a heart and kidney transplant. After weeks waiting in the hospital on the transplant list, Kayla received the ultimate gift — new heart and kidney. Learn more about Kayla’s happy ending – and plans for her new beginning — by watching this FOX 5 news segment.

Atlanta News, Weather, Traffic, and Sports | FOX 5

Kayla’s Wait

For the more than 100,000 people in the United States on the list waiting for an organ transplant, life is a waiting game. Unfortunately, it’s a game Kayla is playing for the second time.

The 23-year-old college student received her first heart transplant when she was just a baby, and although her donor heart has far outlasted predictions, Kayla now needs a new heart and also a kidney.

Watch this Fox 5 news segment to learn more about Kayla’s story.

Atlanta News, Weather, Traffic, and Sports | FOX 5

Related Resources:

Emory Transplant Center
The Gift of Organ Donation
Takeaways from Dr. Turgeon’s “Kidney Swaps and Emory’s Paired Donor Exchange Program” Live Chat

Catching Up with Kidney Transplant Recipient Ken Sutha

Sutha1As we continue to celebrate National Donate Life Month, we love to get and give updates on some of our patients. When we last told you about kidney transplant recipient Ken Sutha, he had just won three medals – two gold and one silver – at the 2010 National Kidney Foundation (NKF) U.S. Transplant Games. Sutha, who received a donor kidney from his father, competed in the 100-yard medley, 50-yard butterfly, 100-yard backstroke, and 500-yard freestyle events. Ken also has completed in triathlons.

Ken’s success goes well beyond athletics, though. After his transplant, Ken received a four-year academic scholarship from the Georgia Transplant Foundation, which helped support his education through graduate and medical school. After graduating from Emory University School of Medicine last summer, he moved to Seattle where he has been in training as a pediatrician at Seattle Children’s Hospital and the University of Washington. While enjoying life in the Pacific Northwest, he’s been caring for many different kinds of kids, including some who are awaiting transplants or who already have had transplant.

“I’ve been getting involved in transplant and donation awareness organizations out here, but I do miss everyone back at the Georgia Transplant Foundation and the Emory Transplant Center,” says Sutha. “Before my transplant, I would have never imagined the direction my life could take. I am so grateful to the transplant community for giving me the opportunity to succeed in many different aspects of my life!

Related Resources:

From Kidney Transplant to Gold Medal

100,000 People are Waiting for a Kidney. Learn More About Emory’s Paired Donor Exchange Program

Paired Donor Exchange ProgramDid you know that there are nearly 100,000 people on the kidney transplant waiting list? With the average wait time for a kidney now at four years, patients are often eager to seek other options to waiting on a deceased donor kidney so that they can get back to living a healthy life. Fortunately, with today’s medical advances, a living or a deceased person can donate a kidney.

The Emory Transplant Center launched its Kidney Paired Donor Exchange Program in 2010 and has been participating in the National Kidney Registry since 2012. Join Nicole Turgeon, MD, associate professor of surgery, Emory University School of Medicine and surgical director of the Paired Donor Exchange Program on April 8 for an online live chat to learn how paired donor exchange works, what it takes to become a donor and how paired donor exchange is helping patients dramatically improve their quality of life.

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