Posts Tagged ‘donate life month’

The Gift of Organ Donation – April is Donate Life Month

donate-lifeFor many, April signifies the start of spring with the first signs of sunnier days, bluer skies and growing flowers. But for transplant patients, their families and donors, April symbolizes another kind of rebirth – the journey of organ transplantation and the generous gifts of organ donors.

Started in 2003 and celebrated every April, National Donate Life Month aims to highlight the growing need for organ and tissue donations and provide a positive reminder for people to sign up to become donors. As we celebrate Donate Life Month, we’d like to take a look back at some of our amazing stories of donation and transplantation. None of these stories would have been possible without organ donation:

If you’re interested in registering to become a donor, it’s simple. Just visit http://donatelife.net/register-now/.

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Emory Transplant Center

When Living Organ Donation Means Living On Through Others

Living Organ Donation Donate Life MonthIn recognition of Donate Life month, the Emory Transplant Center was honored to have a very special speaker share an extraordinary story – one that touches the very heart of what it means to give the gift of life even in times of heartbreak.

Scott Haggard shared with Emory physicians and staff the story of his sister, Terri Haggard Wade – a loving 48 year old wife, mother, sister and daughter – who spent her professional career as a nurse.  And as part of the medical profession, Terri knew the importance of organ donation.  As a matter of fact, when her son was learning to drive, Terri said that before he could drive on his own, he would need to register to become an organ donor.

It was March of 2009 when Terri was rear ended in an automobile accident.  She began to experience headaches, and when they continued after a few weeks, Terri decided to go to an urgent care center to be evaluated. The urgent care center sent her to a nearby hospital to have a CT scan of her head.  And that was when they discovered Terri had a brain tumor.

On April 15, 2009, Terri had surgery to remove her tumor.  The surgery was more complicated than anticipated, and Terri did not wake up immediately after the surgery.  After ten days, Terri still had not awakened and her intracranial pressure spiked to very high levels, causing brain death.

At this time, Terri’s medical team approached her family asking them to make a very difficult decision.  They had to decide whether or not to allow Terri’s organs to be donated – they knew she wasn’t really with them anymore.

“We were never going to have Terri,” said Scott, “but to have her be able to help others, even in death, meant everything to us”.

To honor Terri’s wishes, her organs were donated, saving lives as she had done so many times before as a neonatal intensive care nurse at Egleston.  Terri was very loved among many – over 700 people were present at her funeral.

Although Scott knows that the individuals who received his sister’s organ are grateful for their gift of life, he says “It also means a lot to us, the donor family, to know that Terri is able to live through others”.

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Kevin Jordan and Coach Tom Still Hitting Homeruns

Kevin Jordan Wake Forest Kidney Transplant at Emory

The gift of giving is rewarding on many levels. Giving doesn’t have to be monetary or flashy; in fact, taking the extra step to register and give the gift of life can be the most rewarding gift ever.

Take for example two of our patients, Kevin Jordan and Coach Tom Walter. In 2011, Kevin was diagnosed with ANCA vasculitis, an autoimmune disorder that typically leads to almost immediate kidney failure. At the time, Kevin was an all-star baseball player being actively recruited by both Wake Forest University (WFU) and Auburn University, but he was faced with an illness that could potentially change his future, not only in baseball, but in life. Kevin opted to join the crew at Wake Forest, but as his condition worsened, it became clear to both Kevin and Coach Tom that something would need to be done.

With only a 15% chance of a non-family member making it through the organ transplant matching to donation process, Coach Tom stepped in, armed with a goal and a healthy kidney to donate , he got tested to see if he was a match to serve as Kevin’s donor. The chances of Coach Tom’s kidney being a viable option for Kevin were slim, but… what if? Coach Tom proved to be a viable organ donor for Kevin, and without hesitation, he agreed. You can read more about their story here.

After going through with the transplant, both Kevin Jordan and Coach Tom Walter are doing fine. So great, in fact, that they recently came back to Atlanta with the rest of the Wake Forest Baseball team, who was in town to take on the Georgia Tech Yellow Jackets! It seems that Kevin and Coach Tom truly continue to hit the ball out of the park!

April is National Donate Life Month, register today to be an organ donor and give the lasting gift of life.

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Atlanta: Celebrate Organ Donation with us in April!

Donate Life Month LogoApril is when we as a nation recognize National Donate Life Month. To celebrate the gift of life and organ donation here in Atlanta, Emory is hosting a number of activities and events. We take this time to honor organ donors, the families who make the crucial decision to donate a loved one’s organs, and the relatives, friends and others who donate living donor organs to transplant recipients.

Here are the activities we have planned during Donate Life Month:

Thursday, April 18, 2013 — Swing Easy, Hit Hard Charity Golf Tournament

Book your favorite foursome in this benefit golf tournament and support the Emory Transplant Center and Georgia Transplant Foundation. Event info and registration > 

(Kirk Franz, the recreation manager for the city of Johns Creek, and his family and friends first organized the Swing Easy, Hit Hard Charity Golf Tournament in 2010 to support his transplant fund. He had a lifesaving liver transplant at Emory to treat cholangiocarcinoma, or bile duct cancer. Now that he is fully recovered from his transplant, he and his family (pictured below) organized a nonprofit foundation to continue hosting the event annually to benefit other transplant patients at Emory and at Georgia Transplant Foundation. The foundation helps patients like Franz raise funds for escalating medical expenses following transplantation, which the organization matches up to $10,000 in the first year post-transplant. Last year’s golf tournament raised more than $2,000 each for the Emory Transplant Center and Georgia Transplant Foundation.)

Friday, April 19, 2013 Blue and Green Day

Donate Life Month, Blue & Green Day

Flaunt your best blue and green and show your support for Donate Life’s efforts to register individuals as organ, eye and tissue donors. Wear blue and green or decorate your office or join the day’s Facebook event page. Make sure you post your pictures on our Emory Transplant Center Facebook page, too!

You can also learn more about Blue and Green Day on the Donate Life website.

Week of April 22 – 26, 2013Emory Donate Life Week

Look for information tables with staff and LifeLink of Georgia volunteers answering questions about donation on Monday and Tuesday during lunch hour outside Emory University Hospital’s Asbury Court and in the mornings on the walkway between Emory Clinic buildings A and B.

This month also gives us an opportunity to recognize and thank our neuroscience and critical care colleagues dedicated to caring for patients at the end-of-life who are potential donors. They lovingly work with donor families during a stressful point in their lives. In addition, we commend the staff that work with individuals who make the decision to become a related or non-related living donor. The donation process can be a catharsis for these donors and families, who help make renewed lives possible through transplantation.

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Donate Life Month – Pros & Cons of Organ Donation

Since 2003, April has served as National Donate Life Month and provided the health and transplant communities with an entire month of local, regional and national activities to help support and raise awareness around organ donation.

Currently more than 115,000 men, women and children are awaiting organ transplants to save their lives. They’re in need of hearts, kidneys, livers, lungs, and other organs which can all be transplanted if donors were available, giving them a second chance at life. Understandably, potential donors may have reservations about organ donation, but we’ve compiled a list of pros and cons to help you with your decision of the gift of life.

Pros:

  • ONE organ donor can save up to EIGHT lives. There are nearly 115,000 men, women and children waiting for an organ transplant in the U.S. By registering to become an organ donor, you can help save lives!
  • For the transplant recipient, it is a second chance at life. For some, an organ transplant means no longer having to be dependent on costly routine treatments to survive. It allows many recipients to return to a normal lifestyle.
  • For the family of the deceased donor, they feel a sense of goodness that came from a tragedy – that if the organs are transplanted into a young, deserving person, then their loss was not in vain. Donor families take some consolation in knowing that some part of their loved one continues in life.
  • Living Donation – It is possible to donate organs while you are still alive. Living people can donate a kidney, portions of the liver, lung, pancreas and intestines, as well as blood, and go on to live healthy lives. Most often it is relatives who do living tissue donation. It is possible, however, to register for completely humanitarian reasons and give organs to a stranger.

Cons:

  • Families might be confused by the fact that donor bodies are often kept on life support while the tissues are removed. Surgeons do not remove any tissues unless the person is brain dead, but they sometimes put the body on a ventilator to keep the heart pumping fresh blood into the tissues to keep them alive long enough to harvest. This is not the same as life, but there is a moment when the ventilator is removed and the heart stops.
  • Another “con” might be that the donor does not usually get to choose who the organs go to, and perhaps an organ will go to someone of a different faith, political viewpoint or temperament than the donor. The donor has to believe that all life is sacred and that anyone who receives the “ultimate gift” of a donor organ will be grateful and be imbued with a sense of gratitude and a desire to pay it forward.

To become a donor and for more information visit Donate Life today.

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Donate Life Month “Thank You” from Joe Persichetti

Joe Persichetti transplant patient
Dear Donor Family,

It has been eight years since my life saving heart transplant, and once again, I want to thank my donor and donor family for the gift of life.

I suffered my first of three heart attacks at age 40, and for eighteen years I struggled with heart disease. At age 58 my heart was failing and I was told that I would need a heart transplant to live. I was put on the on the transplant list and waited at home for four months. Waiting and not knowing if the call would come in time. At that point I did the only thing I knew how to do, pray.

When the call did come that there was a heart for me, all I could think about was that someone I never met was going to save my life.

I never imagined that I would enjoy this quality of life. I am using my new life to bring awareness to the importance of organ donation, and mentoring others who are waiting for a life saving transplant. I am determined to give back and celebrate life in honor of my donor.

My family and I are always thankful for each day we have together. I am playing golf and enjoying life to its fullest. I truly must say that my greatest joy is the time I spend with my seven grandchildren. As I hold them close to me I am grateful I have the chance to watch them grow. They are the joy of my life and I am truly blessed.

As always your family and my donor are in my heart and daily prayers forever.

There is no greater gift then the gift of life you shared with me.

Sincerely,
Joe

 

Donate Life Month “Thank You” Message from Terri Lynne

Terri Lynne

My donor was an 11 year old girl from Arkansas; that is all I know of her but not a day has ever gone by that I haven’t thought of her. Words will never begin to explain enough what has been given to me.


I believe I was given more than just a liver; I have her legacy. Even if I don’t know her name, her existence and memory is alive in me. My liver isn’t just an organ to me; it is a part of her.”

 

You can share Terri’s story here.

If you haven’t signed up to become a donor yet and are needing more information, please visit Donate Life.

Celebrating the Gift of Life – Donate Life Month

Since 2003, April has served as National Donate Life Month and provided the health and transplant communities with an entire month of local, regional and national activities to help support and raise awareness around organ donation and celebrate those who have given the gift of life to others by donating. We’ve seen some amazing gifts of generosity here at Emory since National Donate Life Month last year, and in honor of the month, we’d like to celebrate those members of our community who have truly given of themselves in an effort to save the lives of others.

Pamela Emory Employee Living Donor

Pamela Lesane

We kicked off Donate Life Month last year with the help of Pamela Lesane, an Emory Healthcare employee and now patient, after making a very generous gift to her own sister. After beginning her career with Emory Healthcare in Guest Services, Pamela came into contact with a transplant coordinator who asked her if her sister, who had suffered from kidney disease all her life, had ever been evaluated for a transplant. She had not, so Pamela helped her push forward in getting evaluated and her sister was placed on the waiting list for a kidney transplant. It turned out Pamela would be a match for her sister’s transplant, and the rest is history. You can read more on Pamela’s story here.

Shortly after Pamela was able to help bring renewed life to her sister via organ donation, six lives at Emory were saved by as a result of a selfless donation from one man, Jon Pomenville, from Anderson, South Carolina. Imagine waking up one morning in good health and deciding out of the goodness of your heart to donate your kidney to someone you didn’t even know – anyone, anywhere. That’s exactly what Jon did and he wasn’t looking for credit. In fact he was completely comfortable with remaining anonymous throughout the process. But during a follow-up visit to Emory University Hospital, Jon met many of the individuals whose lives he helped change – right there in the transplant clinic waiting room. Jon and four of the other donors and recipients in what is referred to as a paired kidney transplant were coincidentally scheduled for follow-up appointments within a short period of time of one another. It was only a matter of minutes before the patients – recipients and donors – two father and son combinations and Jon, the man who would give to anyone – were hugging, shaking hands, and recounting their lives and experiences. As one person began recounting the experience, eyes and ears began to focus on the tale being told from across a crowded room. Share Jon’s story.

Lester Crowell

Lester Crowell

Many of our transplant community members are recipients of organ donations themselves and have opted to find ways to give back to others in need. Lester Crowell, is a fantastic example of an Emory Transplant patient who took giving back to a whole new level. Lester is a two-time recipient of a donated heart, and as a heart transplant patient, he shared the love in a major way by holding an event to help raise awareness and over $30,000 for the Georgia Transplant Foundation. Check out Lester’s story in this video and blog post.

Kevin Jordan Wake Forest Kidney Transplant at Emory

Coach Tom Walter & Kevin Jordan

We’ve seen family members give to family members, anonymous givers donate life to change the lives of others, and a transplant patient who gave back to the community, but one story, that of Kevin Jordan and Coach Tom Walter of Wake Forest University was an especially touching one for us here at Emory. In February of 2011, we shared Part I of their story. To bring you up to speed, Kevin was diagnosed with ANCA vasculitis, an autoimmune disorder that typically leads to almost immediate kidney failure. At the time, Kevin was an all-star baseball player being actively recruited by both Wake Forest University (WFU) and Auburn, but he was faced with an illness that could potentially change his future not only in baseball, but in life. Kevin opted to join the crew at Wake Forest, but as his condition worsened, it became clear to both Kevin and Coach Tom that something would need to be done. Kevin was in desperate need of a new kidney, and when neither his mother nor father met matching criteria to serve as a living donor, Coach Tom volunteered to be tested as a match. A match he was, and the story is pretty much a fairytale from there. Just months after joining the Wake Forest crew, Kevin and his coach would share a lifelong bond, making them family both on and off the field. In October of this year, just 7 months later, Kevin was able to return to practice at the sport he loves thanks to the generous gift of Coach Tom. Share their story here.

Clay Taber, Transplant Patient with Nurse Allison Batson

Clay Taber & Allison Batson

The giving back here at Emory continued when just a few months ago, our own transplant nurse, Allison Batson, gave of herself, literally, to 23-year-old patient, Clay Taber, who was in desperate need of a kidney transplant. “Immediately when Clay came onto our unit, he became a special patient that everyone just gravitated to,” said Allison Batson. “Here was this young man with everything in his life ahead of him, and he was fighting for his life. He quickly became friends of many of the staff, and really was just a tremendous inspiration to us all.” Allison continued to visit with Clay during his weeks at the hospital, and a deeper connection began to form than the typical nurse-patient bond. “She said ‘If you’ll let me do this, I want to donate my kidney to you,” Clay recalls. “Something at that point just hit me. There are so many people in need of an organ transplant and have been waiting like me – even longer than me in many cases. And here is Allison offering to do this amazing thing. When she said ‘If you’ll let me,’ there was just something in those words. I couldn’t say no.” Share Allison and Clay’s story here.

We are so grateful to the steps that have been taken by the Emory transplant community to celebrate and give the gift of life. Countless lives are changed at the Emory Transplant Center every year because of selfless gifts of those in our community. In honor of Donate Life Month, we will help to spotlight some of these very special stories in the weeks to come. If you have your own story to share, or just want to give thanks to those here who have given the gift of life, please use the comments section below.

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Emory Team Member Shares Living Donor Story in Honor of Donate Life Month

Pamela Emory Employee Living Donor

Pamela poses in front of a picture of her with her sister at Emory University Hospital

Lots of big news in the Emory transplant world as of late. We performed the Southeast’s first hand transplant, our 300th lung transplant, and most of you probably heard about the touching story of Wake Forest University baseball player, Kevin Jordan, and his coach, Tom Walter, who came to Emory to participate in a living donor kidney transplant. This last story, more than any other, has brought a tremendous amount of awareness around the notion of living donor transplants. April is Donate Life Month, and as such, we thought it appropriate to highlight another touching living donor transplant story, this one, between a member of the Emory family, Pamela Lesane, and her sister. We recently interviewed Pamela, who works for Emory Healthcare in Guest Services, about her journey as a living donor.

Morgan: Pamela, thanks so much for helping us promote awareness of living donor transplants. Tell us, where did your journey as an organ donor begin?

Pamela: My sister has suffered with kidney disease ever since she was born. At the time of the transplant she was suffering from both high blood pressure and kidney disease. After I started at Emory, I came into contact with a transplant coordinator who asked me if my sister had ever been evaluated for a transplant. She had not yet been evaluated, and a few weeks later my sister came to Emory and was placed on the waiting list. I asked to be the first one tested as a possible donor candidate. It turned out I was a match and the rest is history.

Morgan: What was the actual donation and transplant experience like for both of you?

Pamela: It was a blessing to finally be able to help my sister after watching her suffer her whole life with kidney disease. My sister often tells me that it’s like her life has started fresh since the transplant.  Her recovery time was short, only about 2 weeks, and she was able to notice an improvement in the way she felt within just a couple of days. Overall it was a wonderful experience for the both of us and brought us even closer than we already are.

Morgan: You mentioned you and your sister are closer now, specifically, how has the organ donation and kidney transplant affected your relationship with your sister?

Pamela: While my sister was on dialysis she was never able to travel as she had to come into the hospital three times a week. After the transplant, we were able to reach a new connection as we were able to travel and spend more time together. We have always been close but through the whole transplant experience we grew closer and are now able to spend more time together, which is wonderful.

Morgan: That’s wonderful to hear. Would you serve as her living donor again? Do you have any regrets?

Pamela: If I could go back in time I would do the transplant over and over again. I have absolutely no regrets, I was able to better my sister’s quality of life and we became closer as a result.

Morgan: Do you now encourage other people to consider being a living organ donor? If so, why?

Pamela: I do encourage other people to consider donation because it truly gives one individual the opportunity to provide someone with a second chance and a new lease on life. Especially if that person is a loved one, the satisfaction of being able to help a family member or friend get a fresh and healthy start to life is a wonderful feeling.

Morgan: How has working in health care changed your awareness and comfort levels with organ donation?

Pamela: If I hadn’t started working at Emory, I would never have come into contact with the people who made the transplant possible. Working in the health care field made me feel more at ease with the whole transplant process, because it was my peers who were looking out for both myself and my sister. I was able to listen to the doctor with a high level of comfort and was able to easily move forward with the transplant. That’s part of why sharing this story was so important to me. I realize that not everyone has the opportunity I did to be informed of the possibility of being a living donor. If you know someone in need of a transplant, it’s certainly worth looking into.

Morgan: Is there anything else you’d like to tell us about the experience?

Pamela: I would just like to thank the Emory community and specifically the transplant team because they truly changed my sisters life and our relationship.

If you have questions for Pamela, or would like to comment on her tremendous story, please use the comments field below.