Posts Tagged ‘emory cancer care’

Survivorship Care Plan- Are You Prepared? Take-Aways from Web Chat

Cancer Survivorship SupportRecently, I conducted a chat with Winship Cancer Institute of Emory University on the Effects of Chemo and Radiation on Cancer Survivors. In 1978, as a child, I was diagnosed with Ewing’s Sarcoma. I received radiation and chemotherapy at that time that resulted in my development of significant late side effects in my adult life.

The participants asked some great questions. One particular question we did not have time to answer was,

“Did you find a survivorship care plan an effective tool for you or your parents once you moved from active treatment?”

For me, a cancer treatment summary or a survivorship care plan was extremely helpful after my active treatment. Without the knowledge from my parents and their guidance, I would not have been able to properly prepare a care plan.

I recommend that every cancer survivor become well informed and secure a treatment summary and survivorship care plan.  Consider it the first step in accepting responsibility for your personal health and well-being after cancer treatment.

A Cancer Treatment Summary should include the following information at a minimum:

  • Identifiers for you (name, medical record number and birthdate)
  • A description of your cancer diagnosis including pathology and staging information
  • A list of all treatments you have received (surgery, chemotherapy, biological therapy, hormonal therapy, and/or radiation therapy)
  • All dates and doses of treatment you received  (i.e. cumulative doses of anthracyclines)
  • Any significant side effects you experienced during treatment
  • Contact name and phone number of a member of your family or close friend
  • Names and Contact information of all providers involved in your care

A Survivorship Care Plan should include the following information at a minimum:

  • A Treatment Summary
  • A plan for long term follow-up including appointments and testing you will need and when you should have them
  • A list of any long term side effects that you need to be aware of and ways to handle them (including physical issues as well as emotional and social issues you may experience)

For more information on how to prepare your survivorship plan and the benefits of having one, check out the chat transcript.

About Stephanie Zimmerman

Stephanie’s personal experience as a child diagnosed and treated for Ewing’s Sarcoma in the late 1970’s led her to become a nurse serving the physical and psychosocial needs of children and their families along the cancer trajectory. In April 2008, Stephanie’s heart failed because of the chest radiation and Doxorubicin used to cure her Ewing’s Sarcoma three decades prior. Unable to return to clinical practice following a heart transplant, yet unwilling to abandon her passion for the survivor population, Stephanie partnered with Judy Bode of Grand Rapids, MI in the founding of myHeart, yourHands, Inc. [MHYH]

Related Resources

When it Comes to Cancer, Beauty is More than Skin Deep

Elizabeth Goodman shares her experience at Winship’s Radiance Boutique

Emory Radiance Boutique“The most beautiful things in the world cannot be seen or even touched; they must be felt with the heart.” This quote by Helen Keller perfectly describes The Radiance Boutique at Winship Cancer Institute of Emory University, which offers up a feeling of beauty that is much more than skin deep and is most definitely felt with the heart. This boutique is no place to find overpriced designer clothing or useless knick-knacks; it is stocked to the brim with wigs, compression garments, and mastectomy bras and prostheses to heal beyond a medical level.

As the Boutique coordinator and certified professional I spend my days measuring, fitting and offering garments to men and women of all ages to help them maintain their dignity and find hope for normalcy on their journey toward recovery. Being present for such an emotional transition in these patients’ lives gives me the opportunity to be more like a guide and a counselor than a salesperson, offering advice on getting through these difficult times and armed with an arsenal of items to help our patients along the way.

Unfortunately, I am no stranger to the heartbreak of cancer. My father was diagnosed with and treated at Winship for lung cancer. Although he lost his battle with cancer in August 2003, my experience with my dad allows me to connect and empathize with our patients and their families as they are going through their experience. My passion for health care and patient interaction led me into this field. Every day allows me the opportunity to use my expertise of the health care industry and my product knowledge of all kinds of prosthetics. At the boutique we provide a wide range of products, including:

Wigs

Most frequently associated with the boutique is our huge variety of wigs. Between synthetic, real hair and customized, the boutique offers the best wigs found in the country. The wigs are made from real hair and can be brushed and styled like natural hair.

The patient’s cap size is measured, and hair is ordered to match the natural hair. After treatment has begun, the patient can go to a hair dresser, have his or her hair shaved off, and then have the wig styled the same way the natural hair was styled. Of course, if the patient would rather change hair style or color, there are several wigs in stock at the boutique ranging in texture, fit, color and cut.

Compression Garments

Compression sleeves and socks are fashioned to provide the perfect amount of constriction on different parts of the leg or arm to increase circulation. For patients suffering from vascular problems, compression garments can be immensely helpful.

Mastectomy Bras and Prostheses

Many patients come for help after having mastectomies during battles with breast cancer. With forms in all sorts of shapes, sizes and colors, our products go a long way in making these women feel beautiful again. The prostheses also can prevent irreversible back problems that often persist from the weight of unevenly carrying only one breast. I often meet with women in pre-surgery consultations show and discuss options available to them after lumpectomies, reconstruction and mastectomies. A commonly requested item is a post-surgical camisole, which features drain pouches for immediate use after such a surgery. They look like tank tops and blend comfortably into any patient’s wardrobe.

The Radiance Boutique is open to patients Monday through Friday from 9:30 a.m. to 3:30 p.m. and is located in the Patient and Family Resource Center at Winship Cancer Institute. For more information or to set up an appointment, call us at 404-778-1264.

Welcome to the Emory Healthcare Cancer Blog!

Welcome to Emory Healthcare’s new cancer blog! We’re glad to be a part of the innovative developments taking place at Emory Healthcare and the Winship Cancer Institute of Emory University, and we are looking forward to sharing helpful cancer information and resources with our community and the Web.

While cancer can be scary and overwhelming, we’re doing everything we can to help improve the quality of life and survivorship of our cancer patients at Emory’s Winship Cancer Institute.

The posts you’ll find on this blog will come from physicians, patients, and staff of the Winship Cancer Institute and will span a broad range of topics. We will provide tips, advice, information about medical advances and new innovations in cancer treatment, survivorship resources, patient success stories and more.

The Winship Cancer Institute of Emory University is the only National Cancer Institute (NCI) designated cancer treatment center in Atlanta or the state of Georgia. As such, the cancer care provided by Winship at Emory is rooted in the latest medical research and advancements to ensure we provide the best possible patient care available.

Our goal is to treat cancer and seek the best possible outcomes for our patients, and to accompany our patients through their cancer journey from beginning to end, which often involves a lifetime of support. We want our patients to live the best quality life possible both during and after treatment and we are committed to providing the survivorship support and resources to help them do so.

Our cancer blog is an opportunity to bring awareness to the amazing medical advances in cancer treatment being made at Emory, but also to share success stories of our patients and their medical teams. We encourage you to subscribe to our blog feed and use the comments to share your feedback, questions, or suggestions for blog topics that interest you.