Posts Tagged ‘cancer patient and family support’

8 Ways to Cope with Cancer as a Young Adult

Young adult with cancerReceiving a cancer diagnosis can be devastating. Just imagine how hard it would be to hear the news as a young adult. The challenges of being diagnosed with cancer between the ages of 18 and 39 are different from those in patients who are diagnosed later in life.

Many young adults diagnosed with cancer experience a disruption in a new career and dating. Cancer and any treatments that follow can sometimes have long-term effects on a person’s ability to start a family.

Here are eight ways to help you cope with cancer as a young adult:

  1. Request and ask for help. Having a support system during this time is critical. Be sure to reach out to others for support even after your treatment is completed.
  2. Consider giving friends and family members specific tasks in order to help you. Some friends and family members may not be sure how best to support you during this time. It may be helpful to you and them to provide friends and family members with specific requests. For example, request rides to treatment, or ask for certain meals to be made or errands to be run.
  3. Educate yourself. Having knowledge about your diagnosis and treatment often helps young patients maintain some sort of control during this time. This also helps to ensure you are making educated decisions about your healthcare.
  4. Ask questions! Do not hesitate to ask your healthcare provider if you have any questions. Write down your questions prior to your medical appointments.
  5. Inquire about how your treatment will affect you. Many treatments affect a patient’s ability to conceive children in the future. Talk with your medical professional about this and what options may be available to you.
  6. Consider reaching out to other young cancer survivors through young adult support groups or connecting online. The Winship Cancer Institute of Emory University currently has a new Young Adult Cancer Survivor Online Support Group that meets once a month. This group is specifically for any young adult who was diagnosed with cancer between the ages of 18 and 39.
  7. Reach out to a social worker for additional emotional support. Oncology social workers have a special level of expertise and are trained to provide support to patients as they are coping with diagnosis and treatment. It is often helpful to be able to process your feelings with someone else. Social workers also have a wealth of knowledge about additional resources that may be helpful.
  8. Try not to compare yourself to other friends or family members. Your cancer diagnosis may have altered your life pattern; however, it does not have to destroy it.

The cancer diagnosis is something that happened to you, but it doesn’t have to define you or control your future. There is help out there; you just have to know where to look and who to ask.

Emory Healthcare

At Emory Healthcare, we’re here to help you find the care you need when you need it. With more than 2,800 doctors and 300 locations, including 11 hospitals, primary care offices, urgent cares and MinuteClinics, we’re delivering specialized care across the region. Find a doctor near you to help you get and stay healthy.

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Emory HealthConnection is where registered nurses can help you find a location or specialist that’s right for you. Call 404-778-7777 from 7:30 a.m. to 6 p.m. EST (M-F).

Winship Cancer Institute of Emory University

Seeing over 17,000 patients a year, Winship Cancer Institute of Emory University is Georgia’s only National Cancer Institute-designated comprehensive cancer center and serves as the coordinating center for cancer research, education and care throughout Emory University.

About Joy McCall, LMSW

Joy McCallJoy McCall is a Winship social worker with bone marrow transplant, hematology and gynecologic teams and their patients. She started her professional career at Winship as an intern, working with breast, gynecologic, brain and melanoma cancer patients. She graduated with a Bachelor of Science in Psychology from Kennesaw State University and a Master of Social Work from the University of Georgia. As part of her education she completed an internship with the Marcus Institute working on the pediatric feeding unit, and an internship counseling individuals and couples at Families First, supporting families and children facing challenges to build strong family bonds and stability for their future. She had previously worked with individuals with developmental disabilities for over 4 years, providing support to families and caregivers.

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Working During Cancer Treatment

Working with CancerTo work, or not to work, during cancer treatment is often a very real decision that patients must make. Some patients need to continue working during treatment for financial support, or to keep their insurance coverage, or just an overall desire to continue working. Working during treatment can be difficult depending on the type of treatment a patient receives, but also on the type of work a patient does. For example, a patient who can work from home may be able to continuing working whereas a patient with a job that requires more physical demands may be unable to continue working. Here are a few things to remember when working during cancer treatment:

  • Discuss your job situation with your medical team. It is important for your medical team to be aware of your desire or need to work during treatment. This may help in determining a treatment schedule that works best for you in order to continue working. Also, discussing the type of work you do with your medical team will allow them to provide you with appropriate information about how your treatment may affect your ability to perform the duties of your job.
  • Depending on your level of comfort, talk with your employer or human resource department about your diagnosis and treatment schedule. This will allow you to discuss any accommodations you may need in order to complete your job tasks. This is also an opportunity to discuss the possibility of working from home.
  • Consider utilizing the Family Medical Leave Act, if you are eligible. This important legislation was put in place in order to protect patients when they must leave work in order to receive medical care. Consult your human resources department for additional guidance in determining if you are covered through this.
  • Consult your human resource department regarding possible short-term or long-term disability benefits you may have available. There may be times in which patients are unable to work due to lengthy hospitalizations or because their medical team advises against it. In instances such as these, you may consider utilizing your short-term and long-term disability benefits in order to continue receiving some income.
  • If you are comfortable, talk with your coworkers about your diagnosis and treatment. Coworkers can be a strong source of support and encouragement during these difficult times. This may also help in developing a work schedule that works for you during treatment.
  • Talk with the social worker at your oncology office. Social workers may be able to help problem solve any concerns or issues you may be having with your employer.

Although working during cancer treatment may be challenging, it does not have to be impossible. Just talking with others about this may help you get the assistance you need.

About Joy McCall, LCSW

Joy McCallJoy McCall is a Winship social worker with bone marrow transplant, hematology and gynecologic teams and their patients. She started her professional career at Winship as an intern, working with breast, gynecologic, brain and melanoma cancer patients. She graduated with a Bachelor of Science in Psychology from Kennesaw State University and a Master of Social Work from the University of Georgia. As part of her education she completed an internship with the Marcus Institute working on the pediatric feeding unit, and an internship counseling individuals and couples at Families First, supporting families and children facing challenges to build strong family bonds and stability for their future. She had previously worked with individuals with developmental disabilities for over 4 years, providing support to families and caregivers.

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Easing the Tension of Traveling for Cancer Treatment

Travel for TreatmentAs a social worker at Winship Cancer Institute of Emory University, I see many patients who travel from out of the state and the country in order to receive medical care. Their cancer treatment can sometimes be scheduled every day for six weeks or more. This can add a lot of stress to an already difficult situation.

It can be daunting to arrange all the transportation and lodging logistics, especially for an extended period of time. Patients and caregivers are also faced with being away from the comforts of their own home and support of loved ones who may live close by. Here are a few tips to consider if you have to travel for treatment:

  1. Contact your medical insurance company regarding travel benefits. Some insurers will provide transportation and lodging benefits in the form of reimbursements if patients must receive treatment a great distance from their home.
  2. Discuss hardships with your medical team. Make sure that your doctor and nurse navigator are aware of any financial hardship you are going through in order to get treatment. Some patients may be able to receive their therapy closer to home at a local infusion or radiation center. They can still continue to be followed by their preferred physician who is out of town.
  3. Reach out to loved ones for support. Many family members and friends may be unsure of how to help when a patient is undergoing treatment, however, they are longing to be able to provide some sort of assistance. Don’t be reluctant to request help with transportation or other needs.
  4. Consider holding a community fundraiser. Many families underestimate the cost of medical care and all that comes with it. Reality can hit when they are fully involved in the treatment process. Fundraisers are a great way to reach out to community members and request assistance. This assistance can then be used to help cover the extra expenses of transportation to a treatment facility or lodging away from home.
  5. Reach out to a social worker at the clinic where you or your family member receives treatment. There may be additional resources or discounts through community agencies that offer further support when a patient or family must travel

Finally, if you have to stay at a hotel during medical treatment, be sure to bring along some special items that will remind you of home. Photos, a cozy blanket and a favorite sweatshirt can help make home feel a whole lot closer. Click to learn more about available resources at Winship for our patients and families.

About Joy McCall, LCSW

Joy McCallJoy McCall is a Winship social worker with bone marrow transplant, hematology and gynecologic teams and their patients. She started her professional career at Winship as an intern, working with breast, gynecologic, brain and melanoma cancer patients. She graduated with a Bachelor of Science in Psychology from Kennesaw State University and a Master of Social Work from the University of Georgia. As part of her education she completed an internship with the Marcus Institute working on the pediatric feeding unit, and an internship counseling individuals and couples at Families First, supporting families and children facing challenges to build strong family bonds and stability for their future. She had previously worked with individuals with developmental disabilities for over 4 years, providing support to families and caregivers.

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