Archive for December, 2017

Dementia Resources We Trust

At Emory’s Integrated Memory Care Clinic (IMCC), we often field questions from family members and caregivers who’ve been doing their own research. And while we encourage you to educate yourself, it can be difficult to separate facts from theories and to make sure your resources are reputable. We’ve set out to provide a list of reliable and trustworthy resources. This isn’t intended to be an all-encompassing list, but these are almost always our first recommendations.

Alzheimer’s Association

The Alzheimer’s Association offers information about Alzheimer’s disease and related dementias including Lewy Body and Vascular dementias. You’ll find information on everything from legislation related to dementia and Alzheimer’s disease to local resources, such as caregiver training and support groups, programs such as SafeReturn® and stage-specific information.
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National Institute on Aging

The National Institute on Aging (NIA) works to understand the nature of aging and the aging process. The institute’s mission includes supporting and conducting aging-related research and sharing information related to this research with the general public, health care professionals, and research scientists. The site has information on healthy aging, caregiving, and end of life planning. You’ll also find information on the latest in aging-related research. 
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Alzheimer’s Disease Education and Referral (ADEAR)

1-800-438-4380 (toll-free) adear@nia.nih.gov
The National Institute on Aging’s ADEAR Center offers free information about Alzheimer’s disease and related dementias for families, caregivers and health professionals. Visit the site to find information on topics like disease basics, causes, symptoms, treatment, caregiving, and research and trials. ADEAR Center staff answer telephone, email and written requests, and make referrals to local and national resources. You can contact ADEAR for answers to specific questions about Alzheimer’s disease, referrals to local support services and research centers as well as information about clinical trials, Spanish language resources and training materials.
View Alzheimer’s Disease Education & Referral (ADEAR) >>

Books

The 36 hour day: A Family Guide to Caring for People who have Alzheimer Disease, Related Dementias, and Memory Loss – Nancy L. Mace and Peter V. Rabins – Offers a great deal of useful information including practical and legal advice, but can feel a little clinical.

Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease – Joanne Koenig Coste – Focuses on the emotional well-being of both patient and caregivers.

Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers – Jolene Brackey – This best-seller focuses on the idea that while caregivers cannot create perfect days for people with dementia or Alzheimer’s disease, they can create moments of joy that linger on as a positive feeling long after the moment has passed. Includes practical advice along with encouragement and humor.

The Alzheimer’s Action Plan: The Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems – P. Murali Doraiswamy M.D. and Gwyther, Lisa P., M.S.W. – Combines the insights of a physician and social worker and includes information on diagnosis, treatments, and guidance for coping with changes in early and middle stages.

Living Your Best with Early-stage Alzheimer’s: An Essential Guide – Lisa Snyder – Intended as a working guide to help the person with Alzheimer’s move forward once diagnosed.

What If It’s Not Alzheimer’s?: A Caregiver’s Guide to DementiaGary Radin, Lisa Radin, and Murray Grossman   A comprehensive guide to dealing with Frontotemporal Dementia (FTD), one of the largest groups of non-Alzheimer’s dementias.

Coach Broyles’ Playbook for Alzheimer’s Caregivers – Frank BroylesWritten with the hope that others could benefit from his family’s experience caring for his wife, Coach Frank Broyles offers relevant tips and strategies for caring for a loved one with dementia.


The Integrated Memory Care Clinic

The Integrated Memory Care Clinic (IMCC) is a nationally recognized patient-centered medical home that provides primary care individualized for someone living with dementia and is designed to replace your current primary care provider. In other words, the IMCC becomes the primary care provider for a patient with dementia. Our goal is to provide the best dementia-sensitive primary care. If you’d like to learn more about the IMCC, or think one of your patients or family members could benefit from our services, please contact our patient services coordinator at 404-712-6929. To read more about the IMCC, please visit www.emoryhealthcare.org/imcc.